My leukemia's back.

Hi folks sorry for spouting off... But always seems to me... Even loved ones don't get it..... When we are sick it off a constant struggle to just pretend that things are normal... Often we are suffering silently.... So when I hear someone who is not sick complain about extra chores I get angry.... My family truly had no idea how hard even the last few years working were for me....

Someone has something in their siggy about being kinder than you have to, because you never know what burden someone else is carrying . . . and you never really know what is going on in someone else's head. I hate asking for help; when I do, I often feel like I am getting a "you are so lucky that I am helping you" vibe back. It absolutely makes me want to bite. But maybe, all they really want is an "I appreciate you?"
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Happy birfendy do joo, Phil's son!!!!
Yeah, what she said!
 
Hi folks sorry for spouting off... But always seems to me... Even loved ones don't get it..... When we are sick it off a constant struggle to just pretend that things are normal... Often we are suffering silently.... So when I hear someone who is not sick complain about extra chores I get angry.... My family truly had no idea how hard even the last few years working were for me....
Thanks Phil and to all for caring...it's hard for me to accept the cutting remarks of my husband...I so wish I had good health...true he does not understand how this disability affects me, his take on the situation is to get my act together and get back to working with the animals....anyway, this evening I am going down to my animals to feed them all and tell them that I will be back soon. I got upset yesterday when I discovered that he had taken away the upturned plastic box that Dizzy and Bertha sleep on...all because it is extra work to clean the poop off...ten seconds with a hosepipe...grrrr! Anyway tonight Dizzy gets her box back...!

Had my appointment with the surgeon...he squeezed my foot and my hands started flapping...you know that feeling when you want to scream silently...anyway, I go back to see him in 2 months so all must be OK
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My husband even remarked that my hands were flapping and he said my face expressed pain...there is a caring human in him that needs to come out once in a while...

C'est la vie

Love to everyone
 
Wow Feel old today is my son's 33rd birthday
Congratulations to him....yes, so true...my eldest niece is in her 40's..

As the saying goes...(according to my Dad)...I'm as old as my skin...but my teeth are a little younger...

If you look young for your age....tell everyone that you were born young!
 
Thanks Phil and to all for caring...it's hard for me to accept the cutting remarks of my husband...I so wish I had good health...true he does not understand how this disability affects me, his take on the situation is to get my act together and get back to working with the animals....anyway, this evening I am going down to my animals to feed them all and tell them that I will be back soon. I got upset yesterday when I discovered that he had taken away the upturned plastic box that Dizzy and Bertha sleep on...all because it is extra work to clean the poop off...ten seconds with a hosepipe...grrrr! Anyway tonight Dizzy gets her box back...!

Had my appointment with the surgeon...he squeezed my foot and my hands started flapping...you know that feeling when you want to scream silently...anyway, I go back to see him in 2 months so all must be OK
fl.gif
My husband even remarked that my hands were flapping and he said my face expressed pain...there is a caring human in him that needs to come out once in a while...

C'est la vie

Love to everyone
hugs.gif
to you -- have you tried saying some of this *to* him? Sometimes folks can be a bit dense at picking up on things that we think should be obviously apparent, perhaps hearing you put into words how his actions and attitude are making you feel would bring about the change you are hoping for? Unless he's just a raging butthead chances are he doesn't *want* to hurt you, so if he knew he was he'd want to change it......

Someone has something in their siggy about being kinder than you have to, because you never know what burden someone else is carrying . . . and you never really know what is going on in someone else's head. I hate asking for help; when I do, I often feel like I am getting a "you are so lucky that I am helping you" vibe back. It absolutely makes me want to bite. But maybe, all they really want is an "I appreciate you?"
hu.gif

Yeah, what she said!
It can be hard on both sides of the equation, that's for sure - but that is truly an excellent way to approach life and one I try to practice, though I know sometimes I slip.

Wow Feel old today is my son's 33rd birthday
Well, happy birthday to him!
 
He is a raging butthead...I have spoken endlessly about his remarks upsetting me and then I get the silent treatment... I do love him but he is challenging to say the least...he will not change despite my protestations...he is happy for me to struggle with 25 kilo sacks of feed from his van to the bins where I keep the animal feed...if I ask him to help he will tell me that it is not his job......in his mind I am still the 15 year old girl he met...I was physically strong and to some degree I still am...when I am challenged I will do whatever is needed.

I guess I am at a low ebb at the moment...I hate to sound as though I am complaining...it would just be nice once in a while for some help without the sarcasm...

I am off to bed now..it is almost 2.00 am....he should be asleep so I can kick him and wake him up...by accident of course.....my humour is still intact at times!

Thanks for listening...tomorrow the sun is due to shine here and Dizzy and Bertha are asleep on their upturned plastic box...that makes me happy for them!

Goodnight friends!
 
He is a raging butthead...I have spoken endlessly about his remarks upsetting me and then I get the silent treatment... I do love him but he is challenging to say the least...he will not change despite my protestations...he is happy for me to struggle with 25 kilo sacks of feed from his van to the bins where I keep the animal feed...if I ask him to help he will tell me that it is not his job......in his mind I am still the 15 year old girl he met...I was physically strong and to some degree I still am...when I am challenged I will do whatever is needed.

I guess I am at a low ebb at the moment...I hate to sound as though I am complaining...it would just be nice once in a while for some help without the sarcasm...

I am off to bed now..it is almost 2.00 am....he should be asleep so I can kick him and wake him up...by accident of course.....my humour is still intact at times!

Thanks for listening...tomorrow the sun is due to shine here and Dizzy and Bertha are asleep on their upturned plastic box...that makes me happy for them!

Goodnight friends!
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to you - and complain away, we all need an outlet and you don't have that with him so use our ears/shoulders when needed. Had to laugh at the "accidental kick", have to admit to having done that a time or two myself. I do hope that tomorrow dawns bright and beautiful for you.
 
Suzie, I'm so sorry that you have this challenge in your life.
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I really don't know that there's anything that I can say that will take the edge off for you. Sometimes prayer works incredible change, without saying a word. I guess that would be the approach I'd take if in your shoes. But... be assured, I'd also be spouting off plenty of words out loud as well!!!!
 
Suzie.... Trust me when I say I completely understand.....:hugs
Try and enjoy a sunrise hun..... Try and lose yourself in the sunrise and let the pain go for a short while.... I care... And I will keep caring....I think I can speak for everyone here and sau we are here for you.... Heal up and keep being you.....
 
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Thank you all for your kind words and understanding...YOU are my family!

My sun is shining today thanks to you...

Had a restless night...apparently I was disturbing the sleep of my husband...did I kick him? He didn't say that I did but he's gone off out in a grumpy mood....me, I am relaxing enjoying the peace and quiet with my dogs...I will.
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when he comes home...! He will find the plastic box in Dizzy's house...
 

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