My leukemia's back.

[LittleLakePhil]

The word is frustrated

 

[donrae]

Eesh Blooie, I'd not thought about diuretics and the self-cathing. That's got to be a challenge, huh?

Besides the breathing I've noticed a bit more fatigue. It's pretty subtle, but I can't figure anything else i can blame it on. Trying to be smart enough to catch this before it gets out of hand.

hb, did I miss when you're going?

 

[LittleLakePhil]

Rachel....i know you are a nurse and all but did you try tapering slow enough?
Because that would explain the fatigue..... Last time I tried I came off too fast and my energy went out the window........ Just felt like sleeping.....

 

[donrae]

It was the cyclosporine this time, not the prednisone. I don't know anything about tapering it, I just *gasp* followed the instructions they gave me. To the letter, believe it or not! It was to decrease by 25 mg every two weeks. Both care providers felt that was a slow taper. I think it's the same instructions they gave me last time I tried to taper this med. I'd made it down to 50 mg twice a day, now I'm going back up to 100 mg twice a day. Thing is, this med also causes me to be on potassium, magnesium, a muscle relaxer, antiviral, antibiotic, antifungal, diuretic, blood pressure med........yep, little pity party here.

Okay, I'm over it. Going to bed and snuggle with my honey.

 

[Outpost JWB]

I'll say a special prayer for you today.

I am so tired this morning. Out too late. Work won't let me sleep. I start new job June 14th. Giving notce of resignation on May 30th. That scares me. They might say "See ya! Leave now!" Then I will not get my scheduled vacation week (june 6-10). Have half mind not to give notice, but I don't want to be like that.

You all have a good day!

 

[sourland]

HATE being tired! For me it's part of the territory - for the rest of you, hopefully things will improve.

 

[Ol Grey Mare]

I'll say a special prayer for you today.

I am so tired this morning. Out too late. Work won't let me sleep. I start new job June 14th. Giving notce of resignation on May 30th. That scares me. They might say "See ya! Leave now!" Then I will not get my scheduled vacation week (june 6-10). Have half mind not to give notice, but I don't want to be like that.

You all have a good day!

Oh, wow, how exciting - congrats on the new job. I do understand the anxiety, but would it really be undoable for you to have a couple of weeks between jobs if that did happen -- if you can afford that sort of gap I'd look at it as a positive and a chance to have a little rest before the next adventure begins. I was a bit longer than anticipated between jobs during this last change, but I am SO glad I had the time I did.

Phil, you just keep finding kiddos to take fishing. You have no idea what a difference you might be making in their world.

When I was younger, a horsie family helped me and hauled my horse to events. My mom was a horse person, but we were so blessedily broke a horse trailer might as well have been a million dollars. Those folks only had a two horse trailer, so sometimes they made two trips to haul my horse. Wonderful, wonderful folks.

I'm off work today, looking forward to a productive day at home. Got the bulk of the garden in, now I just have the pumpkins and some misc to get in the dirt and get a drip line set for.

So true!!!

I had to smile reading your story about your horsie family, Rachel, that was my daddy - and at the time I didn't understand why he did it, but looking back I understand what a gift he was giving to the kids he was helping and why he did it - from hauling kids and animals to fair/events, taking extra kids camping/fishing with us, etc.

Summer is crazy busy here too. We have a broody and she is doing her best. She is our one and only Dixie rainbow hen. She is HUGE, so sitting on a mess of eggs is pretty easy for her. We have yet to candle them, and pretty sure DD shoved more under her than the original 6. Better get the incubator fired up. Who knows how many days in between she had KIDS!

2 more days of school. I thought they were going to start going all year. Hubby would really love that! Better get some shut eye. Still fighting sore throat and tongue:/. Good night.

Year-round school is actually not that bad, DD was in a year round school district while we lived in N.C. and we really liked it.

It was the cyclosporine this time, not the prednisone. I don't know anything about tapering it, I just *gasp* followed the instructions they gave me. To the letter, believe it or not! It was to decrease by 25 mg every two weeks. Both care providers felt that was a slow taper. I think it's the same instructions they gave me last time I tried to taper this med. I'd made it down to 50 mg twice a day, now I'm going back up to 100 mg twice a day. Thing is, this med also causes me to be on potassium, magnesium, a muscle relaxer, antiviral, antibiotic, antifungal, diuretic, blood pressure med........yep, little pity party here.

Okay, I'm over it. Going to bed and snuggle with my honey.

I hope that you had some restful snuggle time and that today will dawn a better, brighter day for you. Hang in there!

 

[Blooie]

We had year round school when we were stationed in San Diego, and we loved it! It was divided into tracks - A,B,C,D. You could opt to have your kids all in the same tract, or you could stagger them. Kids went to school for 6 or 7 weeks, then had 2 weeks off. It was amazing to be able to schedule Ken's leave anytime of the year to go back home to SD instead of waiting until those 3 months of summer. They didn't spend the first 6 weeks of school reviewing what they'd learned at the end of the previous year - learning was almost seamless. They had enough time to have fun and relax between school sessions instead of having 3 months to get bored silly. When our middle daughter began to exhibit signs of her worsening mental health issues, we simply moved her to a different tract from the other two so she could have the weeks out of school as some valuable one-on-one time with us while the others were in session. Surprisingly, when our kids learned their new school was year round, they whined and moaned like crazy, yet when we moved up to Washington State where there was the traditional school year, they were stunned and they hated it!! Imagine that, kids preferring year round school!!

 

[lazy gardener]

Rachel. Do not for a minute feel like YOU have failed in your med reduction. It is what it is. Every now and then, I run across some idiot in the medical profession who places some sort of blame... perhaps not even verbalized, on a patient who is having difficulty with some aspect of their medical management. The last time that happened, I had to close the doors to our treatment area, and go on a bit of a rant to my co-workers. Boy, did that feel good to verbally blast that "care giver" even if she wasn't present to hear my rant!!!! When I jumped up and closed the doors, with steam pouring out my ears, my poor boss just about fell out of his chair. He's never seen me get steamed! Do what you need to do to take care of yourself today. Then, do what you need to do to take care of yourself tomorrow. You may look back in 6 months and be amazed at how those days have added up, and resulted in much improvement that you couldn't see on a daily basis. Look at you now, girl! You're working. I never would have imagined that for you 6 months ago!!!

 

[hbhoffman]

Well said LG! Take the long term view and smile. God had been good and at work in your life.