My leukemia's back.

[LittleLakePhil]

Oh Rachel.... So freaking sorry.


I honestly don't know what to say.
I totally understand however. I've still never understood what is causing your breathing issues. But i hope they come up with something to help.
2 years ago i spent the whole winter gasping for air so i so understand.
You are our friend and we love you so push for an answer from the doctors...I'll be here to offer all the support i can .

Did you know today is my 19th birthday.... Yup 19 years ago today i had my bone marrow transplant.... Actually 19 years to the minute.

 

[N F C]

Rachel, how about a long distance hug ?

It stinks that you have to deal with this.

Amen on that. Hope you get some answers soon Rachel

 

[donrae]

Oh Rachel.... So freaking sorry.

I honestly don't know what to say.
I totally understand however. I've still never understood what is causing your breathing issues. But i hope they come up with something to help.
2 years ago i spent the whole winter gasping for air so i so understand.
You are our friend and we love you so push for an answer from the doctors...I'll be here to offer all the support i can .

Did you know today is my 19th birthday.... Yup 19 years ago today i had my bone marrow transplant.... Actually 19 years to the minute.

congrats! You give me hope........

 

[LittleLakePhil]

congrats! You give me hope........

Hope is a huge deal.... Keep riding them doctors you deserve some answers.

 

[Blooie]

Rachel and Phil, you both humble me. I'm so glad I know you, but so sorry you have to face all this. Phil, Happy Birthday, my friend. What a twist - you had the "birthday", but we got the gift!

 

[LittleLakePhil]

Rachel and Phil, you both humble me.  I'm so glad I know you, but so sorry you have to face all this.  Phil, Happy Birthday, my friend.  What a twist - you had the "birthday", but we got the gift!

Your just too kind how goes my dear friend

 

[hbhoffman]

Reading and thinking of you guys!

 

[LittleLakePhil]

Reading and thinking of you guys!

 

[donrae]

The lung stuff is all graft vs host. New immune system sees the old me as foreign and tries to attack. It comes through in my mouth, eyes and mostly lungs. Hit my liver a bit immediately post transplant, but that's settled down pretty well.

I hate feeling down like this. I'm really kind of nervous about changing med regimens. I've gotten familiar with my meds, they're like old friends by now lol. Thinking of switching, new possible side effects, getting the correct dosing, etc----maybe that's why I'm up at 2 in the morning? Worrying about trying to get in to look at a house on the market isn't helping. Our buyer's agent's wife just had a baby, so he's taking some time off. The rest of his team is covering, but they're stretched thin. The market moves so fast here, I'm afraid we're going to just be too late. We've had multiple places get offers accepted before we even get out to look at them (mostly the delays have been due to Honey's work schedule), so we're concerned about that. Really trying to pray and trust God has a place for us (especially with these cows being here!) to go to soonly.

 

[lazy gardener]

Oh Rachel.... So freaking sorry.

I honestly don't know what to say.
I totally understand however. I've still never understood what is causing your breathing issues. But i hope they come up with something to help.
2 years ago i spent the whole winter gasping for air so i so understand.
You are our friend and we love you so push for an answer from the doctors...I'll be here to offer all the support i can .

Did you know today is my 19th birthday.... Yup 19 years ago today i had my bone marrow transplant.... Actually 19 years to the minute.

Happy birthday, Phil!

The lung stuff is all graft vs host. New immune system sees the old me as foreign and tries to attack. It comes through in my mouth, eyes and mostly lungs. Hit my liver a bit immediately post transplant, but that's settled down pretty well.

I hate feeling down like this. I'm really kind of nervous about changing med regimens. I've gotten familiar with my meds, they're like old friends by now lol. Thinking of switching, new possible side effects, getting the correct dosing, etc----maybe that's why I'm up at 2 in the morning? Worrying about trying to get in to look at a house on the market isn't helping. Our buyer's agent's wife just had a baby, so he's taking some time off. The rest of his team is covering, but they're stretched thin. The market moves so fast here, I'm afraid we're going to just be too late. We've had multiple places get offers accepted before we even get out to look at them (mostly the delays have been due to Honey's work schedule), so we're concerned about that. Really trying to pray and trust God has a place for us (especially with these cows being here!) to go to soonly.

Rachel, will lift you up to the throne room. Would supplemental O2 help? Does hubby do home nursing? If so could he arrange to meet you at a prospective house for a viewing and just push some of his visits back later in the day?