My leukemia's back.

[DwayneNLiz]

Stress test and cardiology appointment today. This should go well. <sigh>

 

[N F C]

Stress test and cardiology appointment today. This should go well. <sigh>

Sending good vibes & hugs your way Blooie!

 

[lazy gardener]

Blooie, I hope they don't make you run on a tread mill! I tried that once, and thought they were going to kill me. I tried exercising once, and decided I am allergic to it: I started perspiring, my face got all red, and I got short of breath.

 

[DaisyLou]

I really haven't wanted to post this, but denial can only take you so far.......

Some of my byc family remembers I was diagnosed with leukemia in June 13. I did all the chemo and had a clean bone marrow in Feb 14, indicating remission. Well, that didn't last. My labs started dropping and I had another bone marrow biopsy, it confirmed I'm relapsed. I go back to OHSU in Portland on Tuesday for induction chemo again. This means a 4-6 week stay, 250 miles from home

. It's going to be quite a challenge for my family. My honey's having a hard time not being able to be with me, but he's got to hold down the fort at home. The boys aren't happy, of course, but at least we've had some warning this time. After Induction and some more chemo, they'll be looking for a bone marrow donor since I don't have appropriate siblings. This whole process is going to take a long, long time.

I know God's got my back with this, and it's His plan no matter what happens. It's just hard being so far from my family. And then even when I can come home, I'll be immune compromised and have to live like a germaphobe again--most of you know I'm pretty much the opposite of that!

So, I'd again encourage anyone who is able to donate blood. Not specifically for me, but for everyone like me out there who relies on a transfusion to keep going.

All my friends who are praying folk--your prayers are always accepted! For those who aren't praying people, feel free to start any time

.

 

[Ol Grey Mare]

Posted (fb) today by Don:

It's so hard to believe....... Rachel is still hanging in there. She was told about a month ago that she would loose this battle. Go home. Say your good-byes. The team of 4 doctors and other health care professionals, all experts in their field, estimated her passing within 2 days to 2 weeks. Yet, here we are. Only GOD knows our time, and HE has not called her home. She is at peace and we are keeping her comfortable. I tell you that I have not been through a tougher trial and I find peace in knowing that We serve a Good and Merciful GOD! He Deserves ALL OUR PRAISE!

 

[Leave a LightOn]

Posted (fb) today by Don:

It's so hard to believe....... Rachel is still hanging in there. She was told about a month ago that she would loose this battle. Go home. Say your good-byes. The team of 4 doctors and other health care professionals, all experts in their field, estimated her passing within 2 days to 2 weeks. Yet, here we are. Only GOD knows our time, and HE has not called her home. She is at peace and we are keeping her comfortable. I tell you that I have not been through a tougher trial and I find peace in knowing that We serve a Good and Merciful GOD! He Deserves ALL OUR PRAISE!

Thank you soooo much for posting this!

Good news, for sure. Such a wonderful woman and family. They needed this time to be peaceful and pain-free.
Praise the Lord!

 

[sourland]

Thanks, OGM.

 

[DwayneNLiz]

Thank you for the update

 

[Blooie]

Oh, thank you so much for posting the update! Been wondering, worrying and praying hard here! I'm so glad she's surrounded by love and compassion - and it relieves my heart to know that she's comfortable.

I kinda envy Don and family for the extra time they are getting. The final decision to put Linda into Hospice was made on Monday morning, she was moved there on Monday afternoon, and passed on Wednesday, never regaining consciousness from that Friday before Russ finally decided to stop everything but comfort measures. Treasure those moments, Don...how I wish I could have looked into Linda's green eyes and told her how much I love her one more time!

Yup, I did the treadmill. Had a little trouble at the end - my pesky lung infection isn't totally cleared up yet. Gee, could that be because I couldn't swallow the stoopid pills??? Swallowing okay now, but anything fibrous or sharp (tried a tortilla chip last week and paid dearly for that ill-informed decision) or super thick and creamy still takes a lot of time. Anyway, got the all-clear today heart-wise to go on the cruise next month....like anything could have stopped me! They changed up one med, but I expected that.

Sorry I haven't been on much. Still not feeling really chatty. I kinda go in spurts yet. But I check here a couple of times a day for updates, and am so glad there was one! Hugs and prayers....

 

[chickisoup]

Oh, thank you so much for posting the update! Been wondering, worrying and praying hard here! I'm so glad she's surrounded by love and compassion - and it relieves my heart to know that she's comfortable.

I kinda envy Don and family for the extra time they are getting. The final decision to put Linda into Hospice was made on Monday morning, she was moved there on Monday afternoon, and passed on Wednesday, never regaining consciousness from that Friday before Russ finally decided to stop everything but comfort measures. Treasure those moments, Don...how I wish I could have looked into Linda's green eyes and told her how much I love her one more time!

Yup, I did the treadmill. Had a little trouble at the end - my pesky lung infection isn't totally cleared up yet. Gee, could that be because I couldn't swallow the stoopid pills??? Swallowing okay now, but anything fibrous or sharp (tried a tortilla chip last week and paid dearly for that ill-informed decision) or super thick and creamy still takes a lot of time. Anyway, got the all-clear today heart-wise to go on the cruise next month....like anything could have stopped me! They changed up one med, but I expected that.

Sorry I haven't been on much. Still not feeling really chatty. I kinda go in spurts yet. But I check here a couple of times a day for updates, and am so glad there was one! Hugs and prayers....

Hi Blooie and rest of team Rachel too!!!
Things just got too busy around the homestead to do more than just a quick read but Rachel & family and YOU too have been on my heart so I just had to pop in and check up on you. My timing was perfect it appears as there was encouraging news on both fronts
A cruise??? I am so jealous! But I am so happy for you. A time of relaxation and a little recuperation sounds like just what THE doctor ordered.

I hope everyone had a blessed holiday weekend. My prayer now is for all of team Rachel to be safe wherever you are in all this crazy weather. Stay safe dear team.