My leukemia's back.

[perchie.girl]

How much longer do you have for radiation?

I just finished my third week... Havent missed any so my end date is on the 29th.

 

[perchie.girl]

8 a day, I can only imagine the discomfort you are in just from the need for more than one.

I guess you just need to stay away from your grandmother for a bit and let Nina deal with everything. Many people going what you are going through would most likely have moved her to a care facility for the duration of your treatment and convalescence from that. You are doing more than you can and that certainly takes out your shields. While we can't be there to help you out, know that we are thinking and caring about you.

I was doing ok with not eating.... sigh. but that is no solution.

I cant avoid grandma... but these days naps work well. Nina will be here when Dean works.

deb

 

[perchie.girl]

deb, tell your oncologist about your sleep problems, and any other problem or concerns you may be experiencing. They have an arsenal of things to help. Some of it may be resolved with your CPAP, but you can't go 2 weeks without getting some rest. You don't have to wait for your appointment to talk to your oncologist. Call the office, leave a message.

Stop worrying about grandma. She's getting care. Of course she's angry. 1. Old people don't like change. Real old people, really hate change. 2. She can't make as many special demands with this caregiver, like she did with you. Give it time. It'll actually be good for both of you.

I have told her. I also have an arsenal of stress meds. Valium is my last one... But I got the stink eye from my Psychiatrist when I asked to get it refilled.... They are watching for people double dosing with any narcotic.

Same goes for pain meds.... I am resorting to 600mg ibuprophin+ 1000mg tylenol. for pain in my legs which is increasing.... Talked it over with the oncologist and she agrees with what I guessed was going on. Lymph nodes are working double time in my Right leg to handle the dead cells produced by the radiation. Ankle, back side of knee, Groin.... this morning similar pains are rearing their heads in my other leg....

WRT Grandma Its like I said... My head handles it. and since I cant escape my heart ignores my head.

We have had only one day with the caregiver... I am going to schedule some days next week ... Hair cut, Pedicure.... those make grandma happy.

deb

 

[bruceha2000]

 

[perchie.girl]

I will cry for you.

Love you muchly, hope things get better as grandma settles in.

Thank you so much for the update .

I wish I could cry.... Grandma will. once she gets to know Nina and understand that shes NOT my Minion.

For what its worth I used A Place for Mom which is a referral service... Highly recommend them.

https://locate.aplaceformom.com

deb

 

[Cynthia12]

Im doing ok. up to two Immodiums 20 minuts before a meal. got severely dehydrated a couple of times.... half gallon of water I drank down and still didint ahve to pee. Drank coupld of cups more and they could do radiation.... but my bladder was only half full.

So they told me to take two immodiums before meals... up to eight a day. Slowing the through put on my bowls stopped the dehydration a bit.

Saw my Pulminologist this morning and she sighned off for the CPaP.... Takes two weeks. Yay...

I see my Cardeologist next week.

Bu in general I am very very tired. yet I cant sleep.

Started grandma with a in home care provider.... shes pissed. But with my son working I cant do the stuff I used to do.

Shes said a bunch of stuff very hurtful stuff and my Filters and shields arent adequate right now. I know Its the beginnings of dimentia... in my thinking brain... but my feeling brain is wounded.

The agency I went through for the helper also specializes in giving care givers support and a break. And understands Grandmas with Dimentia.... first week hope next weeks go better. I like Nina.

deb

2 weeks? I'm going in today to order one. Dr already ordered it. Now to figure out which face mask. Ugh, not sure about this apparatus. :/

 

[perchie.girl]

2 weeks? I'm going in today to order one. Dr already ordered it. Now to figure out which face mask. Ugh, not sure about this apparatus. :/

did you go through a sleep test? they fit you with different kinds of masks and adjust the settings for optimal function. Then you order the machine and mask.... It gets preset for you then you get the machine.

deb

 

[ronott1]

I just finished my third week... Havent missed any so my end date is on the 29th.

I am very happy to hear that the end is getting close!

 

[Cynthia12]

Yes, last year. I was supposed to get one then. But, didnt. Now after this last little episdoe .. doc says, best get it.

 

[getaclue]

Don't cry. A Place for Mom is suppose to be really good at keeping track of the better caregivers, and facilities. You know she is with a good caregiver. She's not being neglected. She's not being abused. She just lost her Minion. As I said, old people hate change. They get very set in their ways. Really old people, really hate change, especially when they're not getting their way all the time. Not all old people are like that, but the majority are. This is an instance of "not what is wanted, but what is needed." She is fine, and being cared for, so stop focusing on her. You've done the best you can for her, and you've done a fine job.

For now, focus more on yourself. Are you allowed Sleepy Time tea? A chunk of turkey meat as your snack shortly before bedtime? Will the doctor allow something a bit stronger for pain? Maybe a dose of of Benadryl, or Sominex which will not only make you sleepy, but it helps a bit with the side effects? One of the craziest things I hit upon was harp music. I don't really like harp music, but when going through chemo I too had times I just could not sleep. I would turn everything off, play harp music I had downloaded, and it would lull me to sleep. That's the only time I ever listen to it, but under those exact circumstances, it helps me. Reading an actual book helps many people, and it distracts their mind from worrying. The water stream from a hand held water pic, aimed at the affected lymph nodes, helps keep them moving things along better, and helps keep them from backing up.

I don't know if any of that helps, but I'm throwing it out there, just in case.