My leukemia's back.

[ronott1]

Don't cry. A Place for Mom is suppose to be really good at keeping track of the better caregivers, and facilities. You know she is with a good caregiver. She's not being neglected. She's not being abused. She just lost her Minion. As I said, old people hate change. They get very set in their ways. Really old people, really hate change, especially when they're not getting their way all the time. Not all old people are like that, but the majority are. This is an instance of "not what is wanted, but what is needed." She is fine, and being cared for, so stop focusing on her. You've done the best you can for her, and you've done a fine job.

For now, focus more on yourself. Are you allowed Sleepy Time tea? A chunk of turkey meat as your snack shortly before bedtime? Will the doctor allow something a bit stronger for pain? Maybe a dose of of Benadryl, or Sominex which will not only make you sleepy, but it helps a bit with the side effects? One of the craziest things I hit upon was harp music. I don't really like harp music, but when going through chemo I too had times I just could not sleep. I would turn everything off, play harp music I had downloaded, and it would lull me to sleep. That's the only time I ever listen to it, but under those exact circumstances, it helps me. Reading an actual book helps many people, and it distracts their mind from worrying. The water stream from a hand held water pic, aimed at the affected lymph nodes, helps keep them moving things along better, and helps keep them from backing up.

I don't know if any of that helps, but I'm throwing it out there, just in case.

I need to keep this in mind!

At my age, I don't like change much either so it makes sense that really old people would like it even less

 

[bobbi-j]

deb, tell your oncologist about your sleep problems, and any other problem or concerns you may be experiencing. They have an arsenal of things to help. Some of it may be resolved with your CPAP, but you can't go 2 weeks without getting some rest. You don't have to wait for your appointment to talk to your oncologist. Call the office, leave a message.

Stop worrying about grandma. She's getting care. Of course she's angry. 1. Old people don't like change. Real old people, really hate change. 2. She can't make as many special demands with this caregiver, like she did with you. Give it time. It'll actually be good for both of you.

This. Especially the part about not worrying about Grandma.

 

[perchie.girl]

My absolute favorite meditation music sadly to say I dont know how to unload it.... and the full album is about 150 dollars.... (14 disks)

 

[perchie.girl]

Don't cry. A Place for Mom is suppose to be really good at keeping track of the better caregivers, and facilities. You know she is with a good caregiver. She's not being neglected. She's not being abused. She just lost her Minion. As I said, old people hate change. They get very set in their ways. Really old people, really hate change, especially when they're not getting their way all the time. Not all old people are like that, but the majority are. This is an instance of "not what is wanted, but what is needed." She is fine, and being cared for, so stop focusing on her. You've done the best you can for her, and you've done a fine job.

For now, focus more on yourself. Are you allowed Sleepy Time tea? A chunk of turkey meat as your snack shortly before bedtime? Will the doctor allow something a bit stronger for pain? Maybe a dose of of Benadryl, or Sominex which will not only make you sleepy, but it helps a bit with the side effects? One of the craziest things I hit upon was harp music. I don't really like harp music, but when going through chemo I too had times I just could not sleep. I would turn everything off, play harp music I had downloaded, and it would lull me to sleep. That's the only time I ever listen to it, but under those exact circumstances, it helps me. Reading an actual book helps many people, and it distracts their mind from worrying. The water stream from a hand held water pic, aimed at the affected lymph nodes, helps keep them moving things along better, and helps keep them from backing up.

I don't know if any of that helps, but I'm throwing it out there, just in case.

with Apnea they dont want you to take sleep meds.... Its not that you cant get to sleep but if you have and abstructive event you have to be able to wake enough to gasp for breath. I have had moments when I dreamed I was suffocating in some fashion. Woke up with my heart pounding and gasping for breath.... Not a heart attack.

You can have what you want to eat if it doesnt effect you.... No High fiber anythign no fruit with skins.... I have been having a peanut butter and honey sandwich on white bread lately... Not supposed to have honey but it doesnt seem to affect me.

two weeks for Cpap... I been living without for so long... The radiation is just exacerbating the tiredness.
Three weeks till the radiation ends.
Then I start with probiotics and yogurt. I could start now but the radiation will wipe it out...

I really do have a very strong digestive tract. I been eating things that should effect me but in very small quantities...

All protiens are good... Eggs Chicken beef fish Cottage Cheese... No raw veggies....

will be happpy to be able to munch on a carrot eventually.

deb

 

[FridayYet]

Did they get ALL of the uck out?

And sheesh... I am worried to ask.... but with a big open wound how is your pain level?

Nope, there was a honeycomb of slots and the only way to get them all would be a mastectomy, so she just cut out the biggest offender. Thankfully the pain wasn’t too bad, except when I tried to sleep for a while. Now that it’s closer to the surface, it’s more of the itchy-burny- nerves- waking- up kind of pain. Mostly annoying.

I've heard of having to dry, or wet pack open wounds before. My best friend's husband is an amputee, and they had to pack him that way, when they took off part of his foot (diabetes). In the beginning they also used a suction machine on it, to remove the drainage. I hope the expensive stuff works out for you. It takes quite awhile to heal like that.

. I think because of the radiation, I never had much drainage which is actually part of the healing problem. You want a happy medium of moisture. I don’t have enough, so had to wet the packing with saline or it wouldn’t dissolve into a gel.

Pretty happy that the hole is down to the size of a dime now, and about half an inch deep. Hoping I can cancel my next appointment. Fingers crossed.

 

[FridayYet]

The radiation is just exacerbating the tiredness.
Three weeks till the radiation ends.
Then I start with probiotics and yogurt. I could start now but the radiation will wipe it out...

deb

I was surprised at how exhausted I was after radiation. Had a tough time driving home from Arizona and then was wiped out for several weeks after. Take care of yourself!

Might want to hit the yogurt anyways, won’t hurt!

 

[Alaskan]

Pretty happy that the hole is down to the size of a dime now, and about half an inch deep. Hoping I can cancel my next appointment. Fingers crossed.

Well THAT sounds good... the wound being down to dime size...... or at least manageable.

 

[perchie.girl]

I was surprised at how exhausted I was after radiation. Had a tough time driving home from Arizona and then was wiped out for several weeks after. Take care of yourself!

Might want to hit the yogurt anyways, won’t hurt!

Yep.... I like it plain or with some cucumber shredded in it..... cant have fruit but I can have applesauce.... No sugar but cinnamon and sucralose.... Oh yummmy

deb

 

[drumstick diva]

Perchie always

 

[Cynthia12]

Got my machine and mask. C Pap. Technology today is amazing! This thing has a modem. And they will get readings at their place. This machine will read my breathing, adjust itself to how I am breathing, or not. I will start it out at 4, it will go ahead and work up to 5 within 30 mins. then adjust from there when needed. If, I wake up, and I don't like/need the pressure as high as it is at the time.. because now I'm awake..I push a button and it will drop back down to 4. It goes up to 19. He had me try some different pressures so I would know the feeling. I went ahead with a larger mask than I thought I would. 2 year warranty, they usually last 5 years or longer. Our ins. will cover most of the things that need to be replaced monthly, or every 3 months, only leaving very little to pay. Filters, new rubber on face mask, face mask itself, tube. Now, if I can only like it. Sure hope it helps. I've woken up with some pretty serious and scary cough attacks, trying to catch my breath. Wish me luck with this thing.