My leukemia's back.

[Cynthia12]

Saw my specialist yesterday. He sat there looked at me... Looked at the computer... Looks back at me, not much to say but... Everything came back good. So I have him perplexed too. He wants me to have an MRI now from the chest up including the brain again since it's been a good year next month since my last. He knows that I have Mylopathy just from seeing last year's MRI. He wants to see further down my spine. So, vitamins in my bod are good. My CT shows that my neck/spine surgery is still good, and my blood vessels look good. He explained better what Puriphial neuropathy is to me, but, I don't have diabetes. Again, a spine issue..from what he saw in last MRI. Occipital neuralgia... cause of my bad migraines. So, I have explanatios for some of the things that have been going on. Still no explanation for my equilibrium problem or why I walk like I do now. He just may end up changing his mind about MS. One reason why he wants to look further down the spinal cord.

 

[bruceha2000]

Good news I guess? Cynthia. Sure would be nice to know what is actually going on. Much easier to deal with mentally and medically.

 

[Blooie]

Cynthia, you don't have to have diabetes to have peripheral neuropathy. I've had it for years. Mine is from decreased circulation in the legs....I have 4 stents in the left artery in my leg and 4 in the right. The lack of proper oxygenation affects the nerves as well as the muscle tissue, even when the decrease doesn't stand out like a sore thumb as mine does. Meds, diet, autoimmune conditions and even spinal issues can also cause it. Kendra has it in the calves of her legs. (We don't know if it would have extended to her feet because she has no functioning nerves in them so she could stand barefoot on a rock and not even know it's there.) Even harder to deal with is idiopathic peripheral neuropathy, where they can't even pinpoint a specific cause.

So don't give up!!! They'll find it! Prayers for you, of course. You've become a special friend to me. Kinda started out through Richard and Kendra and grew beautifully!

 

[getaclue]

Cynthia, I hope they find out what's wrong. I'm wondering why they don't do the CT scan from the knees up, instead of just increments of the spine, then having to repeat it.

 

[getaclue]

Good morning Team Rachel.

Dd #2 visited yesterday. She's doing great, and is back to work. There is a very small scar on her neck, which will eventually blend in, and won't be noticeable at all. She has full range of motion with her head now. Her posture is much better, due to the physical therapy, and as a result, she's slightly taller.

 

[bruceha2000]

That is great getaclue!

 

[N F C]

Good morning Team Rachel

That is great getaclue!

x2!

 

[ronott1]

Good morning Team Rachel.

Dd #2 visited yesterday. She's doing great, and is back to work. There is a very small scar on her neck, which will eventually blend in, and won't be noticeable at all. She has full range of motion with her head now. Her posture is much better, due to the physical therapy, and as a result, she's slightly taller.

Nice outcome!

 

[Blooie]

Good morning Team Rachel.

Dd #2 visited yesterday. She's doing great, and is back to work. There is a very small scar on her neck, which will eventually blend in, and won't be noticeable at all. She has full range of motion with her head now. Her posture is much better, due to the physical therapy, and as a result, she's slightly taller.

Awesome!!

 

[Cynthia12]

Cynthia, I hope they find out what's wrong. I'm wondering why they don't do the CT scan from the knees up, instead of just increments of the spine, then having to repeat it.

His main reason for doing the head and neck scan was because i mentioned how woozy I get when I tip my head way back. Checked the surgery site, and blood vessels in my neck. This last visit, I mention something I hadn't before. (So much to remember) I have this tight tight band like feeling around the front of my chest. So tight at times, I go to lift whatever it could be, nothing there to lift up of course. Very strange. He wants the T area looked at, and since I'm in there, do the brain again to see if anything has changed in a year, since I'm a lot worse this year. He isn't giving up, and has done more, and explained more than anyone. The ENT I went to, stumped, but at least got the last MRI. That eventually got me to this Neuro.