My Poor Mother Is Back In The Hospital

Discussion in 'Family Life - Stories, Pictures & Updates' started by tonini3059, Sep 27, 2009.

  1. tonini3059

    tonini3059 [IMG]emojione/assets/png/2665.png?v=2.2.7[/IMG]Luv

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    Quote:I have wrote about her several times on here, but here it goes again.....She has been to see 2 different Oncologist, A liver transplant doctor, and infectious disease doctor plus numerous others. She has been in four different hospitals, plus the two weeks she was home she has had visiting nurses come. She was looked at by UPMC's Hillman Cancer center, who Works with the Cancer Center of America. So she has seen different doctors and been to different hospitals.

    It all started as an "infectious abscess" in her liver back in January. She seen 3 Infectious disease doctors, 2 liver surgeons two emergency trips to different hospital to finally send her to a liver transplant doctor who was going to have 1/2 of her liver removed in Aug. He opened her up to find that it was cancer and not an abscess and put a stent in the ducts, but did not do anything. She has liver/bile duct cancer which is very aggressive and doesn't respond well to treatment the only thing that can help is surgery, which was out of the question because lesions were seen all across the liver so there was no good part to leave. She came home for a few days then the stent became infected, came home for a few days then had a blood clot in her leg and lung. Came home for a few days and we made an appt for her at UPMC, they said they had a procedure that they could disconnect the blood supply from the liver and run heated chemo through it and add a pump in the abdomen to drip chemo through the body. People have been known to live 5 yrs longer. She went tuesday for the surgery, but when they cut her open the doctor said she has a thousand tiny lesions all throughout her abdominal wall so it would not do anything to target the liver, so nothing was done.
    We have had second and third opinions and have been pushed from doctor to doctor, with one actually leaving to move his practice to Florida and did not tell us.
    Hillman is ranked 3rd best cancer center in the Us and they work right along with the Second best. People come from all over to be treated here. The Doctor himself is calling the other two places to make sure there are no clinical trials that she can get into.
    We have done everything, but we are always just a day late and a dollar short due to misdiagnosis in the beginning.
     
  2. tonini3059

    tonini3059 [IMG]emojione/assets/png/2665.png?v=2.2.7[/IMG]Luv

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    Thanks everyone. The doctor has still not come in to see her. [​IMG] It was a block in the small bowel not the colon. I am not sure if that is better or worse.
     
  3. sfw2

    sfw2 Global Menace

    Do they know what caused the blockage? Has it cleared?

    My thoughts and prayers are with you, your mom, and your whole family.

    [​IMG]
     
  4. redhen

    redhen Kiss My Grits...

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    How is she today? [​IMG] [​IMG]
     
  5. tonini3059

    tonini3059 [IMG]emojione/assets/png/2665.png?v=2.2.7[/IMG]Luv

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    Well I just got come they did a CT and found that there was no blockage there was something wrong with the X-ray. The cancer itself is what is causing the problems, she has a lot of fluid build up in her abdomen and that is putting pressure on her bowels and colon causing discomfort. The Oncologist came in and said he wants to start Chemo tomorrow or definitely the next day, since it has spread so fast in a months time. He also feels that if they can get some tumor shrinkage it may alleviate her problems. They still cannot get her pain managed she is getting dalaudid every hour IV and Oxycontin on top of it every 4 hrs, also she still get nauseated often. Hopefully tomorrow will be better!
     
  6. Hoosiermomma

    Hoosiermomma Songster

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    [​IMG] [​IMG] I hope they can run a course of chemo so the tumor can shrink. Are they draining the fluid from her abdomen? That shoud help a little. I hope they can get the pain managed too. Still keeping her in our prayers! [​IMG] [​IMG]
     
  7. tonini3059

    tonini3059 [IMG]emojione/assets/png/2665.png?v=2.2.7[/IMG]Luv

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    No I don't think it is drainable. It is as if your legs swell it is mostly fluid in the cells. Thanks for keeping her in your prayers!!
     

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