**NEW QUESTION PG. 12** Autism: Yes, you may ask my opinion!

Respectfully: The vitamin D is not going to hurt anything, for sure, but as a "cure" for autism it is untested. The hypothesis that Vitamin D deficiency is causing higher rates of autism is based on the fact that 2 clusters of Somali refugees are experiencing higher rates (in MN and in Sweden). The fact that there could be other contributing factors, etc. has not been studied. Clusters come up all the time, some mean something, some don't. This theory has not been studied enough to come up with any conclusions. I will say that I am light skinned, have always had excellent Vitamin D counts, and lived in TN (sunny) and CA (very sunny) during my pregnancy with my youngest son and he is on the spectrum. Vitamin D clearly not a factor. What was a factor was a strong family link. One of my high school friends lives in Phoenix (really sunny), spent much outdoor time during pregnancy, is light skinned and still has a child on the spectrum. She also has a number of close relatives on the spectrum. What I am getting at is that perhaps there is some merit to the theory, but at this point there is as much argument against the theory as for it and until it goes through some serious testing and peer review, it is just a hypothesis.

For Francie: I would strongly recommend getting your son tested, you should be able to get a referral from your medical doctor to help you in this. Another possibility is to get testing done through your school district. It's important to get a diagnosis for a number of reasons, one of the most important is that if he has a diagnosis the schools legally have to have an Individual Education Plan for him to succeed in school. There should be annual meetings (at least) to see what goals and modifications need to be made for his continued success. In short, it gives you legal power to help get your child what he needs. Another reason is that it gives you a window into how he may think. When we got a diagnosis, it really helped us frame things in a way that he can understand, and made all of us much happier. As to your other questions about the future, I would have to say it depends. It's very hard to see into the future and know everything that will happen. I know that we all want what's best for our children, but know that there are many paths to happiness in life and though your child may or my not take the road less traveled, with love and support he will have a positive life.

As to the "normal" question. Autism never goes away. It's not an illness or an injury. It's a different wiring system. That's all. Peaks and valleys. My son almost broke my heart a few weeks ago, he had been struggling emotionally in Middle school, and we were problem solving how to handle meltdowns. Anyway, he hung down his head and said "Mom, I just want to be normal". I almost cried. But, gave him a hug and explained to him that his fantastic sculpting ability, his puppet making skills, and his extreme compassion are all part of his autism. Yes, it comes with a price, but I told him that I would never want to change him. From those who I have talked to who are adults with autism, and the books that I have read, the big factor in having a functional adulthood is stress, anxiety, and depression. These issues stem out of well meaning pushes to be "normal" aka: neurotypical. Usually in middle school and high school ages.

We are now homeschooling, and we are both very very happy with it. For us, for right now it's the right thing. It's important to be flexible when parenting.
 
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Angiechick,

I love your attitude to your son, really I have been there when they want so desperately to be something else classed as "normal" in today's society.

It is hard and I think you have taken the best route to making him happy, no teacher is ever going to give him the love and individual attention that you will and I am sure he will grow into a fine young man with many special talents.

Thank God for difference, that is what leads to innovation and genius.

Hugs and huge praise for you.

Jena.
 
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Hello there.

What kind of counselor do they want you to take your son to see? I know behavior modification can do wonders, but if it is just regular counseling where the counselor observes him or asks him questions, then I don't know how that will benefit him. Behavior modification therapy can help him with social skills and you can also help him with social skills, but you will need an expert to guide you.
 
I have an 11 yr old son with Aspergers and any discussion on the subject is good for me and as much reading or advice I can get would be wonderful. We didn't get a diagnoses until he was 9 years old, it was a frustrating 5 years trying to figure out what it was and How I could help him. But I knew it was Somewhere on the autism spectrum. Occupational therapy has done wonders for my son.....but i've heard ppl say it doesn't really help. What do you think about Occupation Therapy, do you think it helps?
 
Respectfully: The vitamin D is not going to hurt anything, for sure, but as a "cure" for autism it is untested.

Exactly. But seeing as, like you said, it does no harm, if my son were younger, I would immediately start on a vitamin D/fish oil regime.

The vitamin D hypothesis is just that, a hypothesis. However, in the 19 years with my son and hearing all kinds of possibilities, it is the ONLY one that made sense to me.

I also believe there is a strong genetic component. In our case, a family history of bipolar disorder.

Maybe a case of the genetics "loading the gun" and a vitamin D or EFA deficiency pulling the trigger.​
 
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I agree. It's important to give him as many tools as you can to make his way through life. Just make sure you and therapists work with him to try to navigate through the world and not on trying to "fix" him, he's not broken. Consistency is key, and communication between parents, teachers, and therapists is necessary to accomplish any kind of consistency in approach and focus.

On occupational therapy: I think it depends on the child and their specific issues. Also on the therapists' approach. I think it works for some and not all. Some of the key points in occupational therapy - modifying the environment or work to ensure the child's ability to participate - is very important and can work wonders. Our latest modification (homeschool versus regular school) was just more drastic than our previous modifications.
 
I have not read this whole thread but I did skim through it. I have found 2 things that made a great deal of difference in helping two of my children with this. Both are diet related. Both together made a big difference in the ability to function socially and have a clear thought process and prevent the embarrassment of meltdowns in public (when they were younger) along with a host of other problems like ocd and tics. We first tried the Feingold Diet and it made such a big difference it was like night and day. You have to follow it completely for it to work though. Then we went gluten free. After being on both of these diets together for 2 weeks my dd was able to look me in the eye for the first time! I will do what ever it takes to help them.
 
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Thanks I will deff. do that.

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It's just hard... I don't see him as differant... just as a kid... He is happy, just has quirks when he gets into his shy mode... Thank you for the information

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If I rember right it was like a nueroligist... we are getting a second opinon and am thinking about going the route the school suggested. Not sure what anything is yet.... We kinda just gave in to the concept. I think my husband and I have been in denial maybe.... so we are just now exploring. I will take your ideas to my doctor


Thanks everyone.
 

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