Prayer request for one of our own (Some news pg. 13)

I'll keep yogiman in my thoughts...Just a suggestion I have a friend whos brother went through something like this he lost a 125lbs ina matter of months. They finally found it had something to do with his pituitary. He's doing much better today.
 
Roger, we sure miss you around here! I pray they'll find this awful thing and wipe it out soon. Love ya, buddy.
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So sorry, Roger. Thought maybe things were looking up. Will keep you in my prayers. Hope you have more luck in Houston. Feel better......

Paula
 
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I have Crohn's, the only way to accurately diagnose it is to see it by colonoscopy or a Given imaging pill. (depending on location)

Blood tests are good indicators but are not fool proof. ALL of my blood tests came back normal.

I know the symptoms he is having if his doctor even thought of Crohn's. He needs to find a GI that specializes in Crohn's and Ulcerative Colitis. I went through 3 GIs and a bunch of regular doctors before being diagnosed, and I had 8 out of the 10 most common symptoms including extra GI symptoms. Mine was diagnosed only after emergency surgery to remove 18 inches of my gut.

If he is getting sick from eating it sounds like he has a blockage or stricture. Has he had a barium swallow?

What tests have they run besides the blood tests and a colonoscopy?

If he has not had a barium swallow, he needs to DEMAND that or other diagnostic that can detect a blockage or stricture.

I could never drink Ensure, it would cause me pain and other problems.

For partial relief of the gut pain, get him to drink chamomile tea. (lived of Coke and chamomile tea for 2 years)

Tell him to cut back on the Imodium. NO NSAIDs (pretty much all pain relievers except Tylenol) They cause more harm than good.

I am sorry if I went into his business more than was comfortable but I live with this disease, and I have seen more people misdiagnosed than I care to remember.

Check http://groups.google.com/group/alt.support.crohns-colitis/topics?lnk=srg&hl=en&ie=UTF-8 for a great support group.
 
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TrollKiller - I do not know what all tests that has been done on Roger. I do know that he had a barium x-ray done and that is when they thought/suggested that it was Crohn's disease.

From what he has told me, every time that he eats, then his stomach hurts so bad that he cannot stand it and then whatever he ate is coming out, one way or another. The only thing that he has had to eat/drink and hasn't bothered his stomach is the Ensure drinks, but he is only able to drink about 2 of those each day.

Now I do not know if any of you know anything about Roger's size, but he is not a small man. He is like 6'3" tall. I do not know exactly how much weight he has lost, but when a person is 6'3" tall, then too much weight loss will make a person look like a bean pole...lol

I will keep you all informed as much as I can.

Thanks to all for the prayers and suggested causes. I will pass on the info. to Roger ASAP.

Dorothy
 

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