Everyone on here knows I have a disabled lad.
Well lately I have been a bit annoyed about his daycare centre. A lot of you have helped me through finding a restbite care centre to have him for a few nights a year. This month he had his first overnight. The restbite staff picked him up from daycare and he stayed over with them and then they brought him back to daycare the following morning. Dan takes night fits and I only had one dose of Madasalam which helpes stop seizures so I said to the day care please send his Madasalam you have at the day care with him to his overnight - so that I didn;t lose mine and because Dan has more night fits than day fits and the day centre say they "don't see him have fits?" also they are nearer the emergengy unit as the Hospital is less than 5 mins away from the day centre. I got a Phone call back from them to say "it is not our policy to send meds with our trainees to overnight care?" WHAT!!!!!!!! I was raging because the Meds are in my Sons name they are his meds NOT theirs! So he went to his overnight without his meds. I have since had to get another one especially for the overnight care centre! I was so mad. I told the epilepsy nurse at the hospital and she said that it was all about human rights crap. Apparently they are pushing the medical council here because folk like Dan are being put at risk because of stupid "policy" that leaves vulnerable folk like Dan at risk and often without meds. The Nurse actually said Danny was being denied his Human right of equality as if he was of "normal mental capacity" he would not have left his epilepsy meds behind! So I am not best pleased with the centre to start with.
Then I get a message home to say "we are carving pumpkins and it will be £2.50 each.
The group leader explained that they were doing this because "we- therefore Danny doesn't cellibrate halloween and they wanted to do something he would be involved in". Which on the face of it sounds a lovely thing to do until you think about it.
They are just going to carve pumpkins - I assume this in someway involves a sharp object? Which when you consider Dan in blind and has the mental age of 18 months it may not be very "safe" - "health and safety and all that?" Then I got to thinking where are all these pumpkin guts going? So I wrote back and said it was a lovely idea to include Dan but what exactly were they doing with the Pumpkins? Were they making something useful with the insides? Like soup or Pie? But NO apparently they are not allowed to under - you guessed it "health and safety?"
So my very vulnerable and disabled son who is blind and severely brain damaged CAN use a sharp object to carve out a pumpkin and be left for 24hours without his epilepsy meds but he cannot have soup or pie?
Then I got to adding this all up - £2.50 There are about 8 trainees ( that is what they call them apparently it's their "human rights" to be called Trainee and NOT mentally handicapped - I guess that is supposed to reduce the social stigma of disability?)
So I added that up and it comes to £20.00 then I looked at the price of shop bought Pumpkins which are actually only £1 each. The centre has it's own craft items so the cost of the Pumpkins are £8 which leaves £12 unaccounted for. So today I wrote back and asked what exactly are the overheads that this £12 is needed to cover? I got a tart letter back saying the Trainees apparently had a group discusion and decided on £2.50. Which didn;t exactly answer the question of where this extra money was going? If they had said Oh - we are going on a shopping trip to get the pumpkins and thought it would be nice to stop for coffee and buns? Or we are going to get treats like some buns to eat in the centre while working on the pumpkins I would have been satisfied but instead I was told that my son who has a mental age of 18 months has decided with the group to perchace apparently very "special" pumpkins. She did however say his Pumpkin could be "perchased seperately" if I wanted? - so obviously there was NO real plan in place for the extra £1.50
Anyhow I wanted to write a note back :_
NO I cerainly would not wish Daniel's Pumpkin to be perchased seperately, As Daniel has used his "human rights" and apparently opted to perchase a very expensive and "special" Pumpkin. (Nearly x3 the price quoted by a leading local suppermarket) I can therefore assume that the said "special" Pumpkin will be uniquelly and beautifully carved to equal that of it's financial value? We look forward to recieving this very special piece of creative artwork!
My DH thinks I am being over harsh? But I am of the feeling that I want my son to be Safe(Getting his meds!), Secure, healthy and happy and not be financually exploited! How on earth can a group of retarded young adults work out the real cost of things and why were they not given guidence from the centre and I was not given an answer to the unacounted for funds?
Oes
Well lately I have been a bit annoyed about his daycare centre. A lot of you have helped me through finding a restbite care centre to have him for a few nights a year. This month he had his first overnight. The restbite staff picked him up from daycare and he stayed over with them and then they brought him back to daycare the following morning. Dan takes night fits and I only had one dose of Madasalam which helpes stop seizures so I said to the day care please send his Madasalam you have at the day care with him to his overnight - so that I didn;t lose mine and because Dan has more night fits than day fits and the day centre say they "don't see him have fits?" also they are nearer the emergengy unit as the Hospital is less than 5 mins away from the day centre. I got a Phone call back from them to say "it is not our policy to send meds with our trainees to overnight care?" WHAT!!!!!!!! I was raging because the Meds are in my Sons name they are his meds NOT theirs! So he went to his overnight without his meds. I have since had to get another one especially for the overnight care centre! I was so mad. I told the epilepsy nurse at the hospital and she said that it was all about human rights crap. Apparently they are pushing the medical council here because folk like Dan are being put at risk because of stupid "policy" that leaves vulnerable folk like Dan at risk and often without meds. The Nurse actually said Danny was being denied his Human right of equality as if he was of "normal mental capacity" he would not have left his epilepsy meds behind! So I am not best pleased with the centre to start with.
Then I get a message home to say "we are carving pumpkins and it will be £2.50 each.
The group leader explained that they were doing this because "we- therefore Danny doesn't cellibrate halloween and they wanted to do something he would be involved in". Which on the face of it sounds a lovely thing to do until you think about it.
They are just going to carve pumpkins - I assume this in someway involves a sharp object? Which when you consider Dan in blind and has the mental age of 18 months it may not be very "safe" - "health and safety and all that?" Then I got to thinking where are all these pumpkin guts going? So I wrote back and said it was a lovely idea to include Dan but what exactly were they doing with the Pumpkins? Were they making something useful with the insides? Like soup or Pie? But NO apparently they are not allowed to under - you guessed it "health and safety?"
So my very vulnerable and disabled son who is blind and severely brain damaged CAN use a sharp object to carve out a pumpkin and be left for 24hours without his epilepsy meds but he cannot have soup or pie?
Then I got to adding this all up - £2.50 There are about 8 trainees ( that is what they call them apparently it's their "human rights" to be called Trainee and NOT mentally handicapped - I guess that is supposed to reduce the social stigma of disability?)
So I added that up and it comes to £20.00 then I looked at the price of shop bought Pumpkins which are actually only £1 each. The centre has it's own craft items so the cost of the Pumpkins are £8 which leaves £12 unaccounted for. So today I wrote back and asked what exactly are the overheads that this £12 is needed to cover? I got a tart letter back saying the Trainees apparently had a group discusion and decided on £2.50. Which didn;t exactly answer the question of where this extra money was going? If they had said Oh - we are going on a shopping trip to get the pumpkins and thought it would be nice to stop for coffee and buns? Or we are going to get treats like some buns to eat in the centre while working on the pumpkins I would have been satisfied but instead I was told that my son who has a mental age of 18 months has decided with the group to perchace apparently very "special" pumpkins. She did however say his Pumpkin could be "perchased seperately" if I wanted? - so obviously there was NO real plan in place for the extra £1.50
Anyhow I wanted to write a note back :_
NO I cerainly would not wish Daniel's Pumpkin to be perchased seperately, As Daniel has used his "human rights" and apparently opted to perchase a very expensive and "special" Pumpkin. (Nearly x3 the price quoted by a leading local suppermarket) I can therefore assume that the said "special" Pumpkin will be uniquelly and beautifully carved to equal that of it's financial value? We look forward to recieving this very special piece of creative artwork!
My DH thinks I am being over harsh? But I am of the feeling that I want my son to be Safe(Getting his meds!), Secure, healthy and happy and not be financually exploited! How on earth can a group of retarded young adults work out the real cost of things and why were they not given guidence from the centre and I was not given an answer to the unacounted for funds?
Oes
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