Silent Migraines

[fuzziebutt]

Has anyone been diagnosed with Silent Migraines? It's migraines without pain, but WITH all the neurological auras, numbness, crazy thinking stuff. Feels like I am having a stroke every day! If you have been, PLEASE let me know. I really need to be able to talk to people that understand these!

 

[chickensducks&agoose]

When I was pregnant with my first child, I suddenly lost vision in my left eye... it was the strangest thing, just a big chunk of nothingness... anyway, because I was pregnant, they were concerned about eclampsia, but it turned out to be a silent migraine... I also had a silent kidney infection once.... silent sucks.

 

[Katy]

Mine would start out with the auras, numbness in face and hands, etc, but then that would go away and the pain would hit me full force. So you never have pain with them?

 

[Picky Chicky]

Oh my goodness that sounds terribly frightening! I've only ever had one migraine in my life and it definitely wasn't silent. Migraines are such an entirely different breed of headache that I don't think categorizing them as a headache is even accurate. I just remember holding my head, my face... the pain was so bad that I couldn't focus or hear straight. All I managed to do was go to bed and DH, God bless him, gave me a cool wash cloth and turned the lights out.

The idea of ever going through another migraine - in any capacity scares the dickens out of me!

Silent or loud... I wish you only the best and much relief!

 

[redhen]

Make sure you arent having TIAs... (little mini strokes) Good luck!

 

[Cindiloohoo]

Have you done a food allergy elimination diet? there are a million crappy chemicals they put in our foods these days that have neurological side effects. Just may be of help in relieving symptoms or completely erradicating these migraines. Both my kids have MSG food allergies. One has migraines the other ADD symptoms. We have eliminated most symptoms and almost all headaches by eliminating known problem foods and so long as I cook everything they eat from scratch. No processed junk. Just a thought

I hope you get better!!

 

[sundance]

have you been to a neurologist? Please go marrie

 

[fuzziebutt]

NO, no pain. I got up every morning with numbness in my left hand up to the middle of my forearm. It spread one day to my shoulder , jaw and face. I went to the emergency room, and they thought that I was having a stroke. Until they found 2 aneurysms in the left side of my brain. The thought process part. Yeah! They clamped those off, and I still had the symptoms. So I FINALLY quit smoking (Praise the Lord, after 35 years), and that didn't help either. Finally, and Neurologist diagnosed "silent migraines". I have Googled them, and cried, because I know there are others that have them. They usually start with me seeing SOMETHING in my right eye, running across my peripheral vision, like a rat or something, It doesn't really bother me, since I know what they are. These are called "auras'. I sometimes have seen light on water. Crazy, I know, but others have done or seen the same things. That really helps ALOT! Then the numbness, or the face acting up, like a sinus infection including the ears stopping up, but no infection, just somemore of the aura. Then the numbness, then the not thinking right. I really and truly burned down my hubby's barn, thinking I had it all under control, burning leaves. I killed 2 of my absolute favorite birds, and not having a secure place to keep the rest, I now have none. Wow, would I do that on purpose? No. I cry nearly every day for those sweeties that were burned to a crisp. Dang, I will probably never have chickens again, because I don't want them to be dependent on me. Sad, but the truth.

 

[Jamsoundsgood]

I get them. They are only one of the types of migraines I get. I have patches of skin that will randomly go numb, or just "go to sleep." I get the auras and the fuzziness in the head as well. I forget words, though I blame that on my current medication. I've actually had the whole left side of my body go numb from a migraine before. Have you had an MRI done? There should be lesions (sp?) in you brain to indicate the migraines. Especially since these are also symptoms of MS, you want to rule that out. You are lucky to have seen a nuero that has heard of them before. Most haven't. The first one I went to was pretty certain I had the type of MS that progresses at a rapid rate. Thank heavens for the one I have now. I still have pain now. The medication I'm on controls the pain for the most part and the other symptons are greatly reduced. Diet and sleep play a major role as well in keeping it under control. If you don't get a good nights sleep regularly than that is contributing to your migraines. Avoid processed food where you can. And try to eat at regular intervals. Oh, and weirdly, for me at least, caffeine helps. Sometimes. If I don't have any Excedrine with me a bit of dark chocolate (at least 80%) or if desperate a Dr. Pepper (I admit I enjoy being desperate) will help to keep the aura away long enough to get tomy meds. Feel free to PM me with questions. I've tried a few different meds with my doctor. It's pretty scarry when you realize that you have to live with it forever.
Emily

edited to clarify, after all my MRI looks like I have swiss cheese instead of brain.

 

[Camelot Farms]

My ENT has suggested that my extreme vertigo may in fact be silent migraines. I dont have the numbness but I see little 'things', of course I have the dizziness and sinus issues.
I feel disassociated from the rest of the world. Sometimes I look at my hands typing and have to make them do something else just to prove to myself that they are actually mine.

Its very disconcerting.