The Old Folks Home

Cynthia, many years ago, when I was in the 9-1-1 Biz in Monterey County, one of my dispatchers was a young man with Spina Bifida. Michael, the son of the then- Police Chief of Pacific Grove, had the greatest personality. He kept his wheelchair in the Comm Center during his work week using his arm crutches to get around. I have lots of stories about Michael and how he was treated by people with no mobility issues but many preconceptions of how Michael "should" or shouldn't act. He and I worked the graveyard shift, midnight to 8 am with a couple of other dispatchers. Ummm.. Every dispatcher was full of personality, but we graveyard folks were really special people.
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Quirkier than most.

His first day at work, he rolled in and stopped at the horizontal coat rack attached to the wall in the Break Room. He removed his jacket and tossed it up at one of the hooks, but missed. His jacket fell to the floor. "This needs to be lowered," he said. "I don't know how Tori can possibly reach this." (Tori was 4'11".)

He drove a Mustang with hand controls. One night before his shift, he was checking out new cars in an Auto Canter and got stopped going a wee bit too fast through the complex. For weeks, we got the giggles remembering his encounter with the police officer who stopped him. Yes, the cop approached him and actually snarked, "Got a lead foot?". Michael looked up at him, back to his 'Stang's hand controls, and replied, "No, I don't think so.". That night, out of sheer perversity, I assigned him to work the position handling that police department. (The 9-1-1 center serviced 7 law enforcement agencies, four ambulance companies and 18 fire departments.). His first radio exchange with the officer who had encountered him began, "602, thanks for not making me late."

The Comm Center was in the basement of the county courthouse annex. We all parked behind the building, entering through a doorway servicing the courthouse cafeteria, which was only open during regular courthouse business hours. Every weekday morning around five am, one of us would have to let the donut delivery guy in with the cafeteria's daily assortment of sweet pastry items. (Then wait two more hours to buy any!) Michael always parked his hot Mustang in the handicapped spot adjacent to the loading zone.

One morning, the facility maintenance guy - a long-time employee and disgruntled fellow who was seldom happy about any task - came into the CommCenter around 7 am to announce "Whoever drives that Mustang needs to move out of the handicapped spot so we can get some supplies delivered."

We were busy. I kinda snapped, "It's Michael, he's busy and he's handicapped, Frank." Michael was at the far end of the row of dispatch consoles, seated in his wheelchair, of course.

"Well, he's got to move his car. He can park in the delivery zone."
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"Are you KIDDING me?!?!? Look, he gets off in an hour...". Frank kept coming back to see how long it would be.

I was resolute. When Michael got off duty, we walked out together, he on his arm crutches. His shriveled legs dangled, not touching the floor, swinging back and forth as he stilt-walked across the shiny linoleum surface. I punched the auto-door opener (Michael didn't have a free hand, y'know) and he swung his way to his car. Frank stood next to the delivery truck parked directly behind the blue Mustang in the handicapped spot, his arms akimbo. The annoyed driver sat in the cab of his truck. I waved to him to move it; his and Frank's faces absolutely paled at the sight of Michael stumping down the courthouse back steps. (Much more effective than merely rolling in a wheelchair down the ramp.)

After the truck backed up, Michael peeled out of that parking lot, burning rubber. He did indicate how first rate the driver had been with a single finger.

We worked together for about three years. He was a great dispatcher and lots of fun. I learned a lot about Spina Bifida from him.

So I was reminded of Michael Matteson when reading your son's story.
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Ha...loved loved this story! Thank you for sharing. Great personality that one. Love that sense of humor! Glad you had the experience of knowing how they appreciate being treated like a human being. You were great with him. :)) Not everyone has patience with a person in a chair. Richard still has people tapping their foot in a line if it's taking him time to get his grocery bags together.
 
Hey chirp...my son was born in 81. He was definitely a pioneer for surgical procedures in babies born with this back then. They do a lot of things different for sure now. He was one of the lucky ones, didn't have hydrocephalus, so didn't need the shunt. It was the number one birth defect at the time he was born, but not many folks had heard about it. I actually did a lot of with trying to get public awareness out there. My son was the poster child during one year here in Utah for Spina Bifida. With the help of others, we got the Mayor to make Oct. the month for awareness of Spina Bifida. From then on for about 5 years straight, as Oct. approached, I went to the Provo Herald, the big newspaper for us here in Utah county, and they would do a write up on Spina Bifida, and Richard. They got so they looked forward to us showing up. They would go to the schools and take photos of him with the kids...This is what Richard is up to this year. :) At first, the photos were of him and myself when he was younger. I have some great newspaper clippings. :))
I was part of a 5 year study that the state of Washington did. I would send blood to them, they would send prenatal vitamins to me once I decided to try again. I had to take the vitamins 3 months before trying, then it took three months to become pregnant. My baby was healthy. As the study showed, and many people know by now..folic acid is very important to a woman during pregnancy, especially in the first trimester. First three months. My daughters knew to start prenatal vitamins as soon as they were either trying to get pregnant, or, they found out that they were.
He has been out on his own for around 7 years now. He lives next to a college, went for a while, had health problems, got better, tried going to school again, had health problems again. I don't think he's ever going to get to finish up! He keeps trying. This time around with the health problems, he was getting ready for a wheelchair marathon. You should see this kids upper body! Nice strong boy. But, now, he has to go back into the hospital. It sounds as though he will be in a while. There are some things the dr. wants to suggest he have done, I am not sure he will go for all of it. We'll see.
We stopped counting surgeries back in the 90's, when he was having his 32nd, or 33rd..or.... Most of it has been orthopedic. He has had a few spinal cord release surgeries. Had a surgery for a double ureter implant, they were at the wrong angle. That worked out well, and they have stayed put, but the scar has caused problems since, and he was 5 when he had that surgery. The scar has reopened, and reopened and reopened. :( I think he's done pretty well considering. He started walking with a walker at around the age of 3. Really couldn't get to work on that walking thing because he was in a body cast a few times..hip work. Then he went to arm crutches later, and now is in a wheelchair. He is so much more self dependent in the chair. He gets around much easier. His back was not straight enough to be able to stay up on crutches.
Well, there is some of it. You asked.
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I get going when it comes to answering questions on Spina Bifida. Have gone to many a class room with him at the start of a school year to explain what he has to the kids so they could understand what was up with Richard, and I've gone to a college to speak in a class. To answer questions. Thankful we had that little man, what a darling baby he was, and a handsome young man today. A good person to boot. :)
Let's see if I can find a picture or two.
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Yep, red hair! This is at Primary Children's Hospital..after having been in Provo for 10 days..they messed up at Provo, The Children's Hospital was great!

He's the red head..of course, and the other is the my son, Dustin I had after him.

On the way into therapy.. doing pretty good on the arm crutches.

All boy! Those are worms that he is holding up and showing off, there is a garden to left of the photo.

Here we are a couple of years ago at a Christmas party.

So, here is part of a book for you, pictures and all. :D
Beautiful story! You two are definitely God sends!
Turkey update: She passed away last night. I was just happy she would not have to suffer any longer!

On another note I just helped my 4th Aussie chick hatch! It piped at 4 am and it had nearly quit moving. So I decided to help and it came out. It was just not strong enough to finish I guess. But so happy it alive!
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Sorry about your loss Chicka!
Thats why I ask a pharmacist or SCG!!
Thank gosh I know a pharmacist right now! We are learning about overdosing and Law suits all at the same time!
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Ha...loved loved this story! Thank you for sharing. Great personality that one. Love that sense of humor! Glad you had the experience of knowing how they appreciate being treated like a human being. You were great with him. :)) Not everyone has patience with a person in a chair. Richard still has people tapping their foot in a line if it's taking him time to get his grocery bags together.
The story was great! And you are right when you say that not everyone has patience or the common sense to encounter and advocate for someone that is different or disabled.

Chirp: Did you go see your brother?


On another note: Mom has lost all want to eat. We have gone to a little green herb to stimulate her appetite. It is kind of working but she has definitely been sleeping better now!
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School is going, I knew it would be hard but juggling everything is proving to be a learning process. kids+school+house+husband+chickens+ducks+bills=
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Hey Chickensnew...Yes, took Mom to Birmingham to see Brother. Slowly improving, they actually moved him from ICU (29 days) to a room on Friday, Mom's Birthday...she was thrilled!! He is recovering...slowly, but gaining strength. Still not out of the woods, but better each day. Hoping in 2 weeks they will be getting ready to close the stomach/talk about discharge planning and care at home or local hospital. Thanks so much for asking...and prayers are greatly appreciated!

Hoping your Mom will turn a positive corner soon, appetite/nutrition is so important! That little green herb has been known to combat nausea/stimulate appetite...and also an aid for sleep. A lot of work is going on to separate the main chemical from a lesser chemical component to treat nerve and seizure disorders. Who knows, maybe some good can finally come forward in the world of medicine with regard to that herb???:hu
Some of these new meds are certainly scary enough with their deadly side effects. Prayers and heart felt empathy for you, your Mom and family. It can get rough, but you will get through it. :hugs Chirp
 
Thanks Chicken! Will keep you mom in our prayers!
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Chirp, Still praying for your brother and family!
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Where are the pics of AK????
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Oz Have a great time and be safe!
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I am watching the morning news, no Aircraft went down or had trouble, so OZ had a safe flight. Quote]


I had a great flight. Me and the eggs are through customs. I am in the premier lounge having chicken and ginger rice soup. One domestic flight and I will be almost home.

Scott
 

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