Hello I am Casey and I have a daughter born with Bladder Exstrophy. Her Bladder was on the outside of her body when she was born. It is a rare birth defect that happens about one in every 50 thousand births and what Im told seems to happen more in boys then girls! My daughter just turned 13 yesterday and is doing pretty well! We are looking to meet kids Just like herself! If you don't want to meet and just say hello its fine! Hoping to get a response here!