BYC Café

[bruceha2000]

I don't think there is much hope.

Sadly I haven't heard of anything promising on the horizon either

 

[LaFleche]

Stop cold turkey.
There will be no more clinical trials for DH. The clinic we've been going to hasn't started any new ones due to Covid. If something comes available locally for advanced stage AD I may consider it if the available data is promising. I don't think there is much hope. It's just the way this disease progresses and I have to take things one day at a time.

Does he get vitamin 12 injections (1500 µg hydroxocobalaminacetat) on a regular basis, such as twice a month?

 

[DobieLover]

Does he get vitamin 12 injections (1500 µg hydroxocobalaminacetat) on a regular basis, such as twice a month?

No.

 

[LaFleche]

No.

O dear, that would be the least and most easy thing to help his condition. I took it for granted that he was treated with regular injections already.

Just let his physician show you how to do it, and then you can order online and inject him yourself.

Worked wonders for my father's condition.

 

[LaFleche]

Quite a lot of medications block the uptake of vitamin B12 in the digestive tract, such as
Nexium, Losec, Omeprazol, Pariet and Rifun (protone pump inhibitors). Cimitidin, Zantac and Tagamet,just to name a few. Neither does ongoing diarrhea help with the uptake, which is already somewhat compromised with increasing age.

 

[LaFleche]

Symptoms​

Symptoms tend to develop slowly and may not be recognized immediately. As the condition worsens, common symptoms include:

• Weakness and fatigue
• Light-headedness and dizziness
• Palpitations and rapid heartbeat
• Shortness of breath
• A sore tongue that has a red, beefy appearance
• Nausea or poor appetite
• Weight loss
• Diarrhea
• Yellowish tinge to the skin and eyes

If low levels of B12 remain for a long time, the condition also can lead to irreversible damage to nerve cells, which can cause the following symptoms:

• Numbness and tingling in the hands and feet
• Difficulty walking
• Muscle weakness
• Irritability
• Memory loss
• Dementia
• Depression
• Psychosis

source: https://www.drugs.com/health-guide/vitamin-b12-deficiency.html#

 

[Sally PB]

@LaFleche, can you list some food sources of vitamin B12?

 

[LaFleche]

@LaFleche, can you list some food sources of vitamin B12?

https://www.health.harvard.edu/staying-healthy/the-a-list-for-vitamin-b-12-sources

 

[pennyJo1960]

Hey made it back from the feed store not chicken food or oyster ordered 4 a month ago on the oyster ..
Have been going there a long time kinda throws me

 

[DobieLover]

Maybe his digestive problems/diarrhea you mentioned earlier will subside, now that he stops taking this medication?

I'll have to monitor that.

O dear, that would be the least and most easy thing to help his condition. I took it for granted that he was treated with regular injections already.

Just let his physician show you how to do it, and then you can order online and inject him yourself.

Worked wonders for my father's condition.

He is on the only two drugs known to at least slow down the disease in some patients: memantine and donepezil.
I'll ask the doctor about B12 when we see him next month.