- Thread starter
- #41
Thanks for that.
Tonight Danny came crying down the stairs DH opened the livingroom door and he came in and pushed DH out of the way. Funny thing is he came straight over to me and grabbed at my hands and pulled me up. He wouldn;t let me go and dragged me up the stairs to his room. His music had stopped and somehow he thought I could "fix it"! It was kind of nice to be actually wanted by him. Not bitten or nipped. He gave me a lovely hug and kiss and said he loved mummy. Made everything perfect again. But then I felt all giulty but I havent slept properly in months and neither has DH. He is exhausted. The new meds are working though and Danny is much better and more communacative so he is actually talking to us again ( Though not making much sence!) We got 5 hrs sleep last night that is practically a whole night!!!!!!!!!!!! This new medication is brillient as there are less fits too. I am delighted but worry about the addictive nature of sleeping drugs and all that. In the end I have a more communative less tired boy that is less volatile because he can talk to us and make himself understood so less frustration , more sleep less fits better boy!!!!!!!!! I can live with that!!!!!!!! Anyhow I am away to bed soon. We are looking at another rest - bite centre next Tuesday. I love Danny! I love him more when he is MY BOY!!! not the awful frustrated nipping biting monster with seizures and no sleep!!!!!!
I better away and get some rest before he is up again. I can hear him snoring it is 23.05 here. I may get to 5am!!!!
Oesdog
Tonight Danny came crying down the stairs DH opened the livingroom door and he came in and pushed DH out of the way. Funny thing is he came straight over to me and grabbed at my hands and pulled me up. He wouldn;t let me go and dragged me up the stairs to his room. His music had stopped and somehow he thought I could "fix it"! It was kind of nice to be actually wanted by him. Not bitten or nipped. He gave me a lovely hug and kiss and said he loved mummy. Made everything perfect again. But then I felt all giulty but I havent slept properly in months and neither has DH. He is exhausted. The new meds are working though and Danny is much better and more communacative so he is actually talking to us again ( Though not making much sence!) We got 5 hrs sleep last night that is practically a whole night!!!!!!!!!!!! This new medication is brillient as there are less fits too. I am delighted but worry about the addictive nature of sleeping drugs and all that. In the end I have a more communative less tired boy that is less volatile because he can talk to us and make himself understood so less frustration , more sleep less fits better boy!!!!!!!!! I can live with that!!!!!!!! Anyhow I am away to bed soon. We are looking at another rest - bite centre next Tuesday. I love Danny! I love him more when he is MY BOY!!! not the awful frustrated nipping biting monster with seizures and no sleep!!!!!!
I better away and get some rest before he is up again. I can hear him snoring it is 23.05 here. I may get to 5am!!!!
Oesdog
Even in my tiny town, there are services offered for impaired people of all ages. There's even a girls home in my town for troubled teens. That same company works with kids and young adults who have ANY form of disability. I worked for them for a while. They train all employees on each diagnosis and how to handle it. That includes aggression and violence. I wish they had that sort of program for your family... It keeps the patient in the home if possible and they just take the patient out in the community for their "therapy." The worker also works with the whole family inside of the home on how to do different activities and therapies. I'm sure by now you know how to do all of those things but it's just such a great company that even you might learn something new.
