The problem is, not many Dr's (G.P.'s) know what this is. I was lucky, when it first happened I was in England and was rushed to a "teaching" hospital. The head doctor knew immediately, none of the student doctors did. (Like rounds with House!)AHHHHHHH!!!! THANK YOU!Bornholm Disease! ....... He took me to the ER only to be told I "pulled a muscle". BS!!!! I was flat on my back for a week! . . . . And once again, the Dr. shrugged and offered pain meds. . . . . I wonder if my new Dr. would be willing to discuss and/or research this...
I was told it was a virus, and could re-appear at any time during my life. I've been lucky not having many episodes.
I'm sorry you have attacks of "something" - it would be nice to know what it is, wouldn't it!