Maybe they should remember that you had a meltdown - good for your image. "Don't mess with Rachel." Hey about that 'naughty business' - one never knows.
My leukemia's back.
- Thread starter donrae
- Start date
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- #332
donrae
Rest in Peace -2017
Maybe I'll get the kid glove treatment! Seriously, it's embarrassing, but I guess since it's done I could use it to my advantage
Rachel, you're entitled to meltdowns. I think it's a lot of stress for all you have to go through and you do need to let off some steam . I do agree with the docs, tho. No point in introducing yourself to all kinds of germs. May be kinda gross if the taxi seat was swabbed and grown in a petrie dish, LOL
- Thread starter
- #335
donrae
Rest in Peace -2017
Great day today! Honey had to work (hey, someone's gotta, not like I'm bringing in money anytime soon) so the boys and I just hung out. I spent some time in the coop, and then we went and saw Project Almanac. The story and all was good, but the whole Found Footage/ShakyCam thing was a little much for me, I had to just shut my eyes through a fair amount of it.
Rachel...so great to hear that you had a good day...you will make it through...God is on your side and by your side...he will guide you through..as you well know!
Don't be upset by the Hospital insisting that a friend be with you when you left ...it is standard practice in the UK...no taxi...they acted in your best interests...it happened to me too.. I had a dire emergency which I needed to attend to ..I was in Hospital...I was about to sign myself out when I was given the go ahead to leave...but with a friend...no taxi...I was distraught...needing to get home...luckily a friend collected me on the understanding that they return me within four hours...I happened to be taking morphine in Hospital and I am thankful for their looking after my interests...albeit so frustrating in an emergency situation...
You have an amazingly strong character...that will see you through all of the adversity that you feel you may have to face...you are so much a force to be reckoned with...
Keep being the Rachel that we love and admire..you give US all strength too...
Love to you and your family..
Don't be upset by the Hospital insisting that a friend be with you when you left ...it is standard practice in the UK...no taxi...they acted in your best interests...it happened to me too.. I had a dire emergency which I needed to attend to ..I was in Hospital...I was about to sign myself out when I was given the go ahead to leave...but with a friend...no taxi...I was distraught...needing to get home...luckily a friend collected me on the understanding that they return me within four hours...I happened to be taking morphine in Hospital and I am thankful for their looking after my interests...albeit so frustrating in an emergency situation...
You have an amazingly strong character...that will see you through all of the adversity that you feel you may have to face...you are so much a force to be reckoned with...
Keep being the Rachel that we love and admire..you give US all strength too...
Love to you and your family..
- Thread starter
- #338
donrae
Rest in Peace -2017
Home again, had to go back up to Portland for a final blessing for transplant, and an MRI to check out an irregularity they found on CT. It's a nothing thing, so we're good to go!
I also attended an education class about transplant. Most of it was repetition, but there was one new thing--I have to be sun conscious for pretty much the rest of my life. They said even years post transplant, a severe enough sunburn can trigger life-threatening graft vs host disease.......that's going to be a hard one! I've always shunned sunscreen. I wear hats sometimes, but I love love love being in the sun. Can't tolerate long sleeves, especially in the summer. Guess I'll be checking out the spray on sunscreens and just making it a daily habit. When they say "life-threatening", it tends to get your attention
The plan is for a nice weekend at home, enjoying my guys and then packing. Will head up Monday night!
I also attended an education class about transplant. Most of it was repetition, but there was one new thing--I have to be sun conscious for pretty much the rest of my life. They said even years post transplant, a severe enough sunburn can trigger life-threatening graft vs host disease.......that's going to be a hard one! I've always shunned sunscreen. I wear hats sometimes, but I love love love being in the sun. Can't tolerate long sleeves, especially in the summer. Guess I'll be checking out the spray on sunscreens and just making it a daily habit. When they say "life-threatening", it tends to get your attention
The plan is for a nice weekend at home, enjoying my guys and then packing. Will head up Monday night!
Home again, had to go back up to Portland for a final blessing for transplant, and an MRI to check out an irregularity they found on CT. It's a nothing thing, so we're good to go!
I also attended an education class about transplant. Most of it was repetition, but there was one new thing--I have to be sun conscious for pretty much the rest of my life. They said even years post transplant, a severe enough sunburn can trigger life-threatening graft vs host disease.......that's going to be a hard one! I've always shunned sunscreen. I wear hats sometimes, but I love love love being in the sun. Can't tolerate long sleeves, especially in the summer. Guess I'll be checking out the spray on sunscreens and just making it a daily habit. When they say "life-threatening", it tends to get your attention
The plan is for a nice weekend at home, enjoying my guys and then packing. Will head up Monday night!
It it has to do with drug interaction, then hopefully new drugs will come out one day.
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