My leukemia's back.

[ronott1]

This is just great!

Did you get a b-12 shot and take some multi minerals with copper in it?

 

[Cynthia12]

Haven't gotten my results of my lab work back yet. But, yes I gave myself a shot. I'm supposed to do that every two weeks. didn't realize B12 could make such a big difference, will see what the results say, where I'm at with that particular vitamin. He said I may need to be taking it more often then every two weeks. I may need to take it once a week. May even need to take it a couple of times a week at First until I get levels up. He's just guessing right now as to my B12 levels. I will be a good girl from now on, and give myself shots every two weeks for now. I've been taking a multivitamin for a very long time. I also need to take vitamin D. I do that. When I was diagnosed with fibromyalgia I was told to do all these things. I've been doing pretty good... Except for the B12 shots. But I do take a vitamin called Trinsicon, which is a B12 / iron capsule. So my thinking was, I'm getting B12. Had my CT today. Oh boy, that contrast is a lot different than the contrast for the MRI. Didn't feel so good, was going to say it didn't feel so hot... But that's exactly how I felt... Hot! I now have an appointment to go back to this doctor to get the results of the CT, and hopefully will get the results before or at the office on the 6th with all of the lab work. He will be talking to me about the results of the lab work I'm sure. They took 6 tubes of my blood. That's the most I've had taken, ever, at once. Love this Neuro. Covering all bases. I've not been to one that actually brought vitamins into the picture. He explained how fibro has a lot of similarities to MS. I had asked him if he believed in fibromyalgia. LOL... I had wondered about that in the beginning, but knew that there was something to it after a while when so many things were going on. And he said definitely! If a lot of my blood work comes back normal, he wants me to go in for an MRI from my chest to my brain. My husband and I are beginning to see a lot of $$$$$$ signs. My walking is still bad. Told me my left leg is worse than the right. Woozy! Still. I was way bad today. That's where we're hoping B12 can help. Ok, enough for now. There's more, like I said, he spent close to 2 hrs with me. Prayers, that I will finally get some answers. Thank you!

 

[drumstick diva]

Cynthia, sending high potency prayers your way. Hoping for the best possible outcome

 

[getaclue]

Al, all I can say is, playing outside should involve a pool, or running through the sprinkler very frequently, this time of year. Sunscreen is fine for all of them, but keep a T-shirt on the one that's burnt along with the sunscreen. Cold watermelon, and other cold fruits are great to help cool you down too. Large trees are great for shade, and the temps are usually quite a bit lower under them. Get under one whenever possible when you're outside.

 

[Alaskan]

Haven't gotten my results of my lab work back yet. But, yes I gave myself a shot. I'm supposed to do that every two weeks. didn't realize B12 could make such a big difference, will see what the results say, where I'm at with that particular vitamin. He said I may need to be taking it more often then every two weeks. I may need to take it once a week. May even need to take it a couple of times a week at First until I get levels up. He's just guessing right now as to my B12 levels. I will be a good girl from now on, and give myself shots every two weeks for now. I've been taking a multivitamin for a very long time. I also need to take vitamin D. I do that. When I was diagnosed with fibromyalgia I was told to do all these things. I've been doing pretty good... Except for the B12 shots. But I do take a vitamin called Trinsicon, which is a B12 / iron capsule. So my thinking was, I'm getting B12. Had my CT today. Oh boy, that contrast is a lot different than the contrast for the MRI. Didn't feel so good, was going to say it didn't feel so hot... But that's exactly how I felt... Hot! I now have an appointment to go back to this doctor to get the results of the CT, and hopefully will get the results before or at the office on the 6th with all of the lab work. He will be talking to me about the results of the lab work I'm sure. They took 6 tubes of my blood. That's the most I've had taken, ever, at once. Love this Neuro. Covering all bases. I've not been to one that actually brought vitamins into the picture. He explained how fibro has a lot of similarities to MS. I had asked him if he believed in fibromyalgia. LOL... I had wondered about that in the beginning, but knew that there was something to it after a while when so many things were going on. And he said definitely! If a lot of my blood work comes back normal, he wants me to go in for an MRI from my chest to my brain. My husband and I are beginning to see a lot of $$$$$$ signs. My walking is still bad. Told me my left leg is worse than the right. Woozy! Still. I was way bad today. That's where we're hoping B12 can help. Ok, enough for now. There's more, like I said, he spent close to 2 hrs with me. Prayers, that I will finally get some answers. Thank you!

well.... it sure is nice to have everything examined.

 

[getaclue]

Good morning Team Rachel. I hope everyone has a pain free day!

 

[getaclue]

Cynthia, hang in there. Hopefully, they'll soon find, and be able to help with whatever it is that's ailing you. You are in my prayers.

Al, living in Florida, I deal with the heat more than most, somewhat like living where you do, you deal with more cold than most. If I moved to your neck of the woods, I'd need all the help, and instructions I could get. I'd be like the proverbial fish out of water.

sour, how is Jennifer doing?

 

[Blooie]

Cynthia, Ken has severe pernicious anemia. I've been giving him B12 injections monthly for over 8 years now. At first we did every other day, then weekly etc until his red blood cells were shaped more normally and he had good levels. We asked about B12 oral supplements and were told that if he can't process the B12 from the foods he eats, then an oral capsule probably wouldn't be absorbed and used correctly either. He felt better within just a week or so - less joint pain and dizziness and more energy. Now I tease him and tell him that since his B12 looks just like cherry koolaid, he'd better be very nice to me. I'd sub the koolaid for the B12 and give him his injections as usual. It might take months, but in the end they'd never suspect me!

I'm so glad your new neuro is being so thorough. Yes, Virginia - fibromyalgia is real!!

Just went through several tests myself. Had the low dose lung scan - it showed two small nodules in the upper left lung, but they aren't anything to be concerned about based on size, shape, and edges. Or some such.

I'm bruising like crazy. I always have with the blood thinners, but this has really gotten ridiculous. I woke up one morning with 7 big bruises - no clue where they came from. When we were back in South Dakota, my sister Lori and I were talking in the kitchen. I felt a deep, "under the skin" itch, looked at my arm, and had two dark blue welts, which we literally watched join and spread. By that evening I had a new bruise there that was bigger than half a dollar. I have them on my legs, back, stomach, chest, arms and legs. I almost cancelled out on going shopping for a new formal with Lori - I didn't want to be trying on clothes with all those bruises. But my dear husband promised me he'd get me a T-shirt that says, "Don't worry, he's already in jail" to go along with the bruises.

So as soon as we got back, Ken took me in to our primary. He about flipped when he saw the bruises. The nurse took my blood pressure - yep, bruises now from the cuff. Doctor ordered an EKG - bruises from the stuck-on electrodes. All of those formed before I even left the office. He ordered blood work - 9 vials worth, which was the most I've ever had taken - and one of the tests was for Von Wildebrands. It's usually inherited, but can occur later in life, I guess. Anyway, that came out normal. He'll go over the rest of the results with me on the 3rd and set up another cardio appointment for me up in Billings.

So, like you, now I wait.....

 

[Alaskan]

Cynthia, Ken has severe pernicious anemia. I've been giving him B12 injections monthly for over 8 years now. At first we did every other day, then weekly etc until his red blood cells were shaped more normally and he had good levels. We asked about B12 oral supplements and were told that if he can't process the B12 from the foods he eats, then an oral capsule probably wouldn't be absorbed and used correctly either. He felt better within just a week or so - less joint pain and dizziness and more energy. Now I tease him and tell him that since his B12 looks just like cherry koolaid, he'd better be very nice to me. I'd sub the koolaid for the B12 and give him his injections as usual. It might take months, but in the end they'd never suspect me!

I'm so glad your new neuro is being so thorough. Yes, Virginia - fibromyalgia is real!!

Just went through several tests myself. Had the low dose lung scan - it showed two small nodules in the upper left lung, but they aren't anything to be concerned about based on size, shape, and edges. Or some such.

I'm bruising like crazy. I always have with the blood thinners, but this has really gotten ridiculous. I woke up one morning with 7 big bruises - no clue where they came from. When we were back in South Dakota, my sister Lori and I were talking in the kitchen. I felt a deep, "under the skin" itch, looked at my arm, and had two dark blue welts, which we literally watched join and spread. By that evening I had a new bruise there that was bigger than half a dollar. I have them on my legs, back, stomach, chest, arms and legs. I almost cancelled out on going shopping for a new formal with Lori - I didn't want to be trying on clothes with all those bruises. But my dear husband promised me he'd get me a T-shirt that says, "Don't worry, he's already in jail" to go along with the bruises.

So as soon as we got back, Ken took me in to our primary. He about flipped when he saw the bruises. The nurse took my blood pressure - yep, bruises now from the cuff. Doctor ordered an EKG - bruises from the stuck-on electrodes. All of those formed before I even left the office. He ordered blood work - 9 vials worth, which was the most I've ever had taken - and one of the tests was for Von Wildebrands. It's usually inherited, but can occur later in life, I guess. Anyway, that came out normal. He'll go over the rest of the results with me on the 3rd and set up another cardio appointment for me up in Billings.

So, like you, now I wait.....

oh blah!

not fun!

My mother in law on vacation with father in law went bike riding and fell. Not badly, but her sunglasses banged against her face, and yes, 2 huge black eyes.

For the rest of the vacation every time her husband went to the restroom people would come up to her and ask her if she needed help.

Which is great.... that people are willing to step up and help.... but mom in law was a bit embarrassed.

 

[lazy gardener]

Cynthia, Al, GAC, Friday, Blooie, Hugs and prayers for you. Waiting is almost worse than the malady that you're waiting for info on. Hugs and prayers to anyone else who needs an extra dose of love. Perchie girl, how you doing?????