My leukemia's back.

[BigBlueHen53]

@sourland, I missed getting notifications on this thread for a while, so I just read everything from your October request for prayers for your daughter to here, ending with the good news that all is well and she's doing fine. It was a 5-minute roller coaster ride but I'm so happy to hear all is well, and praise God for the great outcome! Christmas blessings to her, you and the Princess and all your family!

 

[BigBlueHen53]

That's reassuring. Usually it means a benign cyst when they say that. Not real often, but sometimes cysts do disappear.

I went to the oncologist Friday morning. I'm getting mixed results from the Verzinio, and hormone blocking shots. The lung mets have shrunk, as have the mets in the lymph nodes. The bone mets, however, have not been affected by the treatment, and are both active, and slowly increasing in size.

Because of the mixed results, chemo has been put on the back shelf for a bit. We were able to stop the bone mets before with a drug called Zometa. I'm going to try it again, to see if it will again stop the bone mets. I HATE Zometa, and yes there are a couple other options, but they're even worse, so it's not really an option at this point.

Sounds like you're in need of prayer, too!

 

[Alaskan]

Just seeing this. Hope all went well. I go in for my yearly exam/mammogram next Thursday. I had a spot on the right they were watching, but couldn't see it on last mammogram. Whew. They looking at that area.

Keep is updated. I pray it goes well.

That's reassuring. Usually it means a benign cyst when they say that. Not real often, but sometimes cysts do disappear.

I went to the oncologist Friday morning. I'm getting mixed results from the Verzinio, and hormone blocking shots. The lung mets have shrunk, as have the mets in the lymph nodes. The bone mets, however, have not been affected by the treatment, and are both active, and slowly increasing in size.

Because of the mixed results, chemo has been put on the back shelf for a bit. We were able to stop the bone mets before with a drug called Zometa. I'm going to try it again, to see if it will again stop the bone mets. I HATE Zometa, and yes there are a couple other options, but they're even worse, so it's not really an option at this point.

Well, ew.

I am so sorry, the first try didn't work for everything.



I hope the Zometa works, with fewer issues than the last time you took it.

 

[getaclue]

Cynthia, I'm still praying that your spot was nothing, and is gone now.

 

[getaclue]

Keep is updated. I pray it goes well.




I hope the Zometa works, with fewer issues than the last time you took it.

I figure any medicine that makes you feel as bad as that one does, has to do something good for you in return.

 

[FarmerWallace]

I really haven't wanted to post this, but denial can only take you so far.......

Some of my byc family remembers I was diagnosed with leukemia in June 13. I did all the chemo and had a clean bone marrow in Feb 14, indicating remission. Well, that didn't last. My labs started dropping and I had another bone marrow biopsy, it confirmed I'm relapsed. I go back to OHSU in Portland on Tuesday for induction chemo again. This means a 4-6 week stay, 250 miles from home

. It's going to be quite a challenge for my family. My honey's having a hard time not being able to be with me, but he's got to hold down the fort at home. The boys aren't happy, of course, but at least we've had some warning this time. After Induction and some more chemo, they'll be looking for a bone marrow donor since I don't have appropriate siblings. This whole process is going to take a long, long time.

I know God's got my back with this, and it's His plan no matter what happens. It's just hard being so far from my family. And then even when I can come home, I'll be immune compromised and have to live like a germaphobe again--most of you know I'm pretty much the opposite of that!

So, I'd again encourage anyone who is able to donate blood. Not specifically for me, but for everyone like me out there who relies on a transfusion to keep going.

All my friends who are praying folk--your prayers are always accepted! For those who aren't praying people, feel free to start any time

.

I'm new to this site, and yours was the first post I saw. I'm so sorry for the struggle you've been through and must face again. My heart goes out to you. You're right, of course, that God's got this, but i know it doesn't always feel that way. We are just human, after all. That said, we're also sons and daughters of God. Please take hope, my sister in Christ. I am and will be praying for you, your husband and sons.

-John

 

[Alaskan]

I'm new to this site, and yours was the first post I saw. I'm so sorry for the struggle you've been through and must face again. My heart goes out to you. You're right, of course, that God's got this, but i know it doesn't always feel that way. We are just human, after all. That said, we're also sons and daughters of God. Please take hope, my sister in Christ. I am and will be praying for you, your husband and sons.

-John

The lovely lady who started this thread lost her battle.

We keep this thread going as a memorial to her, and as a way to give support to all those who are going through medical struggles.

 

[Blooie]

Haven’t read all the way back, but it looks like Rachel’s Waiting Room has been a busy place!!
Sending lots of hugs!

 

[Cynthia12]

My mammogram looked good..from what I could see. The gal let me look at the right side. That pea size dark spot they were watching didn't show. So, waiting for my good news letter in the mail.

 

[Cynthia12]

Oh man ..I'm wishing everyone a good upcoming year!