I'm sorry.
While I can't even begin to phantom the difficulties you're experiencing, I can imagine them to a lesser degree as our family also has a need.
Speaking from first hand, personal knowledge: Truly, getting help for those who need it here in the states isn't much better despite what many may indicate here! Yes, the programs are out there, but a lot of the funds used for these programs have been severely cut over the years with more coming and no end in site! There are waiting lists, upon waiting lists for these services - adult and child(ren) alike.
Our public school systems are overburdened with special needs students and our health insurance companies merely pay a pittance (if anything at all!) for outside services to help them have a better life.
The thought of reliable home health care is but a pipe dream.
But we do what we can, with what we have, and make it work - no matter how unconventional it may be. It's exhausting work, no doubt, and there are plenty of times we want to throw up our hands and say, "I GIVE UP!" But we don't. No matter how frustrating it may be. No matter how overwhelming it becomes. We keep going. We keep doing what is necessary to see our loved ones through.
again... Know that while you may feel alone and overwhelmed - there are others out there, across the globe, experiencing the same things and are here to listen when you need them.

While I can't even begin to phantom the difficulties you're experiencing, I can imagine them to a lesser degree as our family also has a need.
Speaking from first hand, personal knowledge: Truly, getting help for those who need it here in the states isn't much better despite what many may indicate here! Yes, the programs are out there, but a lot of the funds used for these programs have been severely cut over the years with more coming and no end in site! There are waiting lists, upon waiting lists for these services - adult and child(ren) alike.
Our public school systems are overburdened with special needs students and our health insurance companies merely pay a pittance (if anything at all!) for outside services to help them have a better life.
The thought of reliable home health care is but a pipe dream.
But we do what we can, with what we have, and make it work - no matter how unconventional it may be. It's exhausting work, no doubt, and there are plenty of times we want to throw up our hands and say, "I GIVE UP!" But we don't. No matter how frustrating it may be. No matter how overwhelming it becomes. We keep going. We keep doing what is necessary to see our loved ones through.
