The Old Folks Home

Chiropractor today. Then Costco, bank, and the garden store.

I'm not sure if I'll get anything done in the garden today. I need to check on the tomatoes; I think I'll have enough to can by next week. Once they start coming on, I try to can some as they're ready. 4 quart jars fit in my stock pot, so I don't have to wait for full canner load or feel like I'm "wasting" the canner space when it's not full.

I need to can about 50 quarts or so, plus salsas. It really helps if I've done a couple of sets of 4 quarts. Yeah, that's just a fraction of what I need to do, but psychologically, I feel like I've made good progress, and the job is well in hand.
 
It used to be that when diagnosed with cancer, the cancer centers (for example Moffitt Cancer Hospital) would assign doctors as needed, like a team. My oncologist was like the hub, since she was/is the main doctor that knew where I stood with treatment, medications, etc. A couple years ago, I noticed they began making changes in their protocols. They began slowly at first, but over the course of a couple years, they have become major changes.

It started with me needing an antibiotic. My oncologist explained that the cancer center policy had changed, and I'd have to go to my PCP to get it. This sounds like a minor thing, but when taking cancer meds, there are a LOT of drug interaction warnings. While one antibiotic may be taken with this chemo, it can't be taken with that one. It's not just antibiotics that work this way. That's why it was best for the oncologist to direct things like this, being the main hub of care, since they have a working knowlege of the drugs that can, or can not be taken.

One of the more recent changes, I've always been able to get all my test results through the patient portal. A couple months ago, they stopped posting CT scan results, liver panel results (blood test), etc. They still post the CBC results (complete blood count), but little more than that.

The last CT scan I got, when I was going over it with my oncologist, I noticed it mentioned my heart. I don't recall ever seeing one with my heart being mentioned. I didn't think a lot about it, otherwise my oncologist would have mentioned it, right? Apparently not.

For the heck of it, I began doing a little research about what was said regarding my heart. Hmmmmm, this can be serious. I scheduled with a cardiologist. He read the report, and scheduled me for a stress test. I have an opinion about that too, but I'll save that one for later. He mentioned that with the CT scan, he was unsure as to who read the results, so while it wasn't totally invalid, he wasn't sure it provided all the information he needed.

He did not say this outright, but he fully indicated that the CT scan was primarily ordered regarding my cancer, so the person reading it, and doing the report, focused mainly on the cancer details, not necessarily focusing on, or fully detailing other issues (like my heart). Meaning that in the report, my heart was mentioned, but not all the specifics, and not all the details.

At this point, I'm starting to see this as a major decline in our healthcare system. The CT scan was paid for, and HAS all the information. When they read it, it should include ALL details, for ALL potential risks. Yes, I offered to get a copy of the actual scan, so he could read it for himself, but he gave me this look, and declined my offer.

The point of this post, is to encourage everyone to pay attention, and learn to advocate for yourself.
 
It used to be that when diagnosed with cancer, the cancer centers (for example Moffitt Cancer Hospital) would assign doctors as needed, like a team. My oncologist was like the hub, since she was/is the main doctor that knew where I stood with treatment, medications, etc. A couple years ago, I noticed they began making changes in their protocols. They began slowly at first, but over the course of a couple years, they have become major changes.

It started with me needing an antibiotic. My oncologist explained that the cancer center policy had changed, and I'd have to go to my PCP to get it. This sounds like a minor thing, but when taking cancer meds, there are a LOT of drug interaction warnings. While one antibiotic may be taken with this chemo, it can't be taken with that one. It's not just antibiotics that work this way. That's why it was best for the oncologist to direct things like this, being the main hub of care, since they have a working knowlege of the drugs that can, or can not be taken.

One of the more recent changes, I've always been able to get all my test results through the patient portal. A couple months ago, they stopped posting CT scan results, liver panel results (blood test), etc. They still post the CBC results (complete blood count), but little more than that.

The last CT scan I got, when I was going over it with my oncologist, I noticed it mentioned my heart. I don't recall ever seeing one with my heart being mentioned. I didn't think a lot about it, otherwise my oncologist would have mentioned it, right? Apparently not.

For the heck of it, I began doing a little research about what was said regarding my heart. Hmmmmm, this can be serious. I scheduled with a cardiologist. He read the report, and scheduled me for a stress test. I have an opinion about that too, but I'll save that one for later. He mentioned that with the CT scan, he was unsure as to who read the results, so while it wasn't totally invalid, he wasn't sure it provided all the information he needed.

He did not say this outright, but he fully indicated that the CT scan was primarily ordered regarding my cancer, so the person reading it, and doing the report, focused mainly on the cancer details, not necessarily focusing on, or fully detailing other issues (like my heart). Meaning that in the report, my heart was mentioned, but not all the specifics, and not all the details.

At this point, I'm starting to see this as a major decline in our healthcare system. The CT scan was paid for, and HAS all the information. When they read it, it should include ALL details, for ALL potential risks. Yes, I offered to get a copy of the actual scan, so he could read it for himself, but he gave me this look, and declined my offer.

The point of this post, is to encourage everyone to pay attention, and learn to advocate for yourself.
It's pitiful. My rheumatologist puts in his notes on the computer that he spent a lot of time with me, when it was actually 5 minutes. I need a new guy, but not many around.
 

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