Uterine Fibroids . Embolization? Hysterectomy? Thoughts???

[welsummerchicks]

I had the same type of problem.

I got a hysterectomy.

It was divine. I went to a really great hospital and they were seriously thorough in everything.

If you leave it, like I did, you can wind up in some really serious trouble.

Me? I almost bled to death.

I was stupid. I should have gotten it done right away, I went to surgery on an emergency basis because I was hemorrhaging blood by then. The fibroids had grown so much they were twisted around everything and starting to turn abnormal (into cancer).

Got it all out just in time.

I was back riding in 5 weeks and back in full training in 6 weeks.

It's not going to stop. If your body wants to make fibroids it will keep making fibroids. But the only tissue it can really use, is uterine tissue. You take out the uterus, no more fibroids.

I suffered for years.

I was a moron. I don't recommend anyone do what I did. As my friend said, "I can't leave my job' can very easily turn into 'Rest in Peace', Doofus".

In your case, it sounds like you can have them leave your ovaries in, and just take the uterus. So no instant menopause.

Best of both worlds.

I sent my doctor flowers for Christmas for 10 years, LOL!!!

 

[cpwhip]

I kept one ovary everything else was removed and it was the best thing I ever did!!!!NO more pain !!!!!

 

[Rhett&SarahsMom]

Quote:
No, never have. never will.
from what I gathered I have had these since I was younger. Hence the not being able to get and stay pregnant thru my 20s(was actually a blessing in disguise then though. Since I was married to my wasband then) My obg calls my daughter the miracle baby since the fibroids in my uterus were about the same size as she was by the time she was delivered via c sect 8 years ago. The doctor told me after her delivery that they "cleaned" my uterus of more than they thought were there from the u/s I had to monitor one particular one. I was fine with no pain etc until about 6 months ago. I suddenly felt a heavey sensation in my belly area. My mood swings got voilently out of control. I knew it was the fibroids. So I made an appt with my ob to discuss it. Sure enough. they were/are back. The one on my left side has grown nearly double its orginal size from just 5 months ago. With no added hormones.

So,,, just because I am not currently bleeding doenst mean that isnt down the road for me? Nice. I think that if I was bleeding then they would listen to me more and a partial hys would be on the table. But since I am doing the opposite it isnt. Honeslty.. the pain is greater than the pain I was in recovering from my c sect. I took tylenol for two days and after that nothing. This is 2 Vicoden so I can sleep.. and now they have me on a NSAID . Only thing that has hurt more was the kidney stone.. and it is not a kidney stone. I KNOW THAT pain all too well. And I can handle pain. This has me in tears. It ALWAYS hurts. Its constant. It began in my left side.. now it feels like it is girdling my hips. Small cramps,,, but mostly a nice stabbing and burning feeling. But they saw no cyst. No fluids on the u/s, just a larger fibroid on that side.

MRI is Friday morning. I am wondering how much longer I am going to have to be in this pain before they do something besides give me pills. Plus I miss work SO MUCH.

 

[Buugette]

I didn't have fibroids... but my pain was insane and my periods were 27 days long. I was given 3 options... and since I was already 42, opted for the most radical. I had the partial done... keeping both my ovaries... and have been loving life ever since.

I saw 2 different docs... made my choice... and am very happy with the results. There is no reason to live with that kind of pain when it can be fixed.

Best of luck and I hope you feel better soon.

D

 

[CupOJoe42]

You NEED to change doctors!!!! I would keep changing doctors until you find one that will listen to you and treat the problem, not mask the symptoms with pain pills. So sorry you are going through this - I am keeping you in my prayers.

 

[cuntryuppiechick]

I believe birth control can cause migraines, pain, and fibroids also. Your doctor sounds like they are not thinking of your health, but their own morals or beliefs on having children, or they are obeying the insurance company. I would keep looking for a doc that listens. You cannot keep functioning at work on vicodin and it will only become an addiction. I am so sick of doctors dismissing how badly our health affects our daily lives when they don't live it and see it everyday.

 

[chicmom]

I have to say you are wayyyyy more important than any job. Take care of yourself and get that hysdirectomy. End this pain for yourself. YOU DESERVE TO FEEL GOOD!

Trust me, if you lose your job, another one will come your way.

Wishing you the absolute best!

Sharon

 

[cpwhip]

hope you feel better soon....

 

[Rhett&SarahsMom]

Quote:
I think with her it is the health insurance company that is driving her on the no hys. She knows that one kid was more than enough for me.. My pregnancy was THAT hard. Recovery was just as hard. Good thing my daughter is a great kid. LOL

I have the MRI tomorrow morning and a consult set up for the 15th for the embolization. I am going to talk to that surgeon about my options as well. And will be speaking with my obg about a partial hys. A bit more strongly. I know it is the right choice for me.

Thank you all for the support. I really appreciate it more than you all could know

 

[Rhett&SarahsMom]

Update:

I am at work.. still uncomfortable. The appt I have on the 15th is at the Oncology dept. which I was previously unaware of. Imagine my shock when I found this out.... Needless to say I am barely keeping it together. Every time I let myself "go there" I have to run for the bathroom. My supervisor.. tells me. "Dont worry.. its probably nothing" then a bit later asked me if I was going to be in after the appt I have with the oncologist. I told her no. If its negative I plan on relaxing...if it is positive. I plan on taking care of stuff. In addition. I am sure.. one way or another that "something" will be happening next week as far as moving towards making me feel better. so I have all my FMLA papers in hand. According to my supervisor I need to have them date it back to when I began needing time off for this. Fine with me. All I want at this point is answers.

Thank you all again for your support through this. I really dont know what I would do without ya all.

Martha