I am so sorry to hear about your son. What a horrible loss. Children shouldn't die before their parents. I am praying for your family. Thank you for sharing your beautiful son's website with us.
We almost lost our 3 year old daughter last year. She also has several heart defects and was doing well. She was absolutely fine when she went to bed and when we woke we thought she was sleeping late, then realized something was wrong. She suffered a massive stroke, undetermined why, but everyone is assuming due to her heart defect. Doctors did not expect her to live, but she did and it has been almost a year since it happened. We know we are extremely fortunate to still have her here in our life.