Latest update on DH.
I decided today that I was not going to wait to hear from them regarding the broncoscopy and wait for the appointments with the cardiologist and pulmonologist that they scheduled for mid to late August !!!
I called the pulms office and voiced my concerns about it and also the fact that the pulm appointment was with his PA and not him. I also wanted to know if there were any results yet.
She said a nurse would call me back.
Well, a nurse didn't call back. The Doctor himself did and he said he was very concerned and had just spoken with the cardiology department.
He said the DH does indeed have Sarcoidosis in his lungs and he may also have cardia sarcoids. He said that they would be calling me shortly to reschedule his appoinment and would also be scheduling some more tests.
They did call and he is going in for an MRI on his heart on Monday and back to see the Electrophysiologist at 7:40am on Tuesday.
He said this is a big deal and he needs the heart doctors to see him before he starts treatment so any tests they run won't give false neg results.
I asked what the treatment of choice would be and he said Methotrexate (sp) and Prednisone and for probably NO LESS then TWO Years !!!!
He also said if DH experiences any cardiac symptoms at all that he should go straight to Wausau Aspirus........ Do not go any place else......and that I should tell them that he has Cardiac Sarcoid and give them his name.
Said this is a big deal and serious stuff. Cardiac Sarcoid is very rare I guess. He said this has been going on for quite some time and that it develops slowly in the heart.
TG we went to Wausau and found this guy.
The good news in all of this is that it is not caused by our birds or chickens..... They do not know what causes it.
Ok, that's it for now. I'm beat. Long day with calling and waiting etc. We went to a local bar in Pelican Lake for FFF and it was the best we've ever had there. Makes me want more...NOW !!! lol
Here are a few links to what DH has for inquiring minds.
http://heartdisease.about.com/lw/He...-diseases/Overview-of-Cardiac-Sarcoidosis.htm
http://www.mayoclinic.com/health/sarcoidosis/DS00251