You've been fighting this battle for so long, I'd hoped for so much more progress for you. The quality of life decision is a hard to one to make that no one can make for you. Since they can't tell us how they feel we have to make the decision and hope it's the right one.
We're here for you no matter what and we'll support whatever your decision is.
Good luck to both of you, the little guy is a fighter and he's lucky you're in his corner.
Kat