Are you kidding me?

mom'sfolly :

I actually went to more than one news source, including several Canadian sources. Fox News is making the parents request into something it is not.

This family is not asking for the child to live; merely to have him die at home. Dieing at home means surgery to get him there. The kid can't breathe on his own. The family is asking for a trach to be done so they can take him home to die. They are not asking for some miracle to make him live. If they take the breathing tube out the child dies.

I don't know what the hospital's or doctor's reasoning is, but my guess is that they feel that this is unneccesary surgery on a dieing child.

Their reasoning is that the tracheotomy could possibly open him up further to infection and pneumonia, making him suffer even more. The doctors did a trach on his sister many years ago, reluctantly. The story I posted says that. I understand that side, but this is their child. He does not belong to the government.
 
How sad.

If the folks want a trach put in so they can take him home and remove it, for gods sake, DO IT! Each day he's in the hospital only costs more - a lot more than a trach and a home nurse to be there for him if needed.


FWIW my mother works for a company that is funded by Medicaid/Medicare, and does pediatric home nursing. Her two "kids" have traches, which she cares for. Both are very handicapped, and have an extremely short life expectancy. Both still smile, laugh, and respond, but will never grow up. It's so very hard to work with ill, terminal kids, and sounds like they need a new board.

Let the poor kid pass away at home
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I am so glad my kids are almost grown. I have never committed a crime in my life but if someone tried to interfere with MY right to parent MY children the way I believe is best I would fight like a mad woman!
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They would have to lock me up! We don't have to agree with the parents here, we just have to respect the fact that it is THEIR baby. I'm sure the family could raise funds to cover the cost of a trach and pain meds if that were the mitigating factor.
 
the story is not being reported fully, if you read the article and those of us who know about this will tell you the media failed to report everything in its entirety.

this family went through the exact same thing with a previous child and tried the whole court ordeal before. I lived an hour from where they live and I remember this very well. the first time they won the right to have the child die in their home peacefully. But our doctors and hospitals have a procedure they must follow and made an exception with this child.

the parents went and had 2 more children though they knew it was a 50/50 chance that the children would be born with the exact same neurological disease. this time around the parents are trying to postpone the inevitable. the child cannot breath on his own and even with the apparatus in the child has to be revived numerous times. the doctors, some highly respected neuro surgeons know that this is just making that child suffer more and have proven it to the courts. the parents are now asking for the same right to take the child home and allow him to die at the house. However this time around they said NO, because this child is a high risk child and if anything goes wrong the parents could potentially sue the hospital and the doctors. They are not looking at it as saving money etc...I know of three people who are in a vegetative state that a neuro surgeon has said they may one day wake up because there is some brain activity that are in long term care at this very same hospital. I know this because I used to volunteer at the Hospital in London Ontario.

I feel awfully bad both for mom and dad and the sibling who has to go through this right now. I could never imagine having to make a decision such as this and then try to fight it. But they know the reasons why they were turned down. and the reasons why the court ordered the breathing tubes out. The sad part is the public is only getting half the story.

I just hope this child doesn't suffer anymore than he already has. And the same for the parents. I also do wish that they could just make them sign release papers and allow a nurse to to be at their home, as we have the support program for this. However the doctors see it as too risky. especially since they went through this with another child last summer and the whole thing went down the tubes real fast. Which is another reason they will not allow it.

Ema
 
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If death is inevitable then "high risk" shouldn't matter. Here if you want to be released from the hospital when the docs don't agree, you sign a paper stating you understand you are being discharged against medical advice. This protects the hospital and staff from lawsuits.
 
mom'sfolly :

I actually went to more than one news source, including several Canadian sources. Fox News is making the parents request into something it is not.

This family is not asking for the child to live; merely to have him die at home. Dieing at home means surgery to get him there. The kid can't breathe on his own. The family is asking for a trach to be done so they can take him home to die. They are not asking for some miracle to make him live. If they take the breathing tube out the child dies.

I don't know what the hospital's or doctor's reasoning is, but my guess is that they feel that this is unneccesary surgery on a dieing child.

That figures......................
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......FOX..........
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It still does not make sense..... A trach is a pretty simple operation, you or I could do it.

I feel for the family.. Too bad they have to be subected to the international spotlight with the FOX political propoganda machine....

ON​
 
This makes me SICK! One more point aganist govt run health care...
they even said the baby got BETTER here in the States because they gave the baby TREATMENT... which they wont do where hes at now.
wow... this is just heartbreaking....and so very scary.
 

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