BYC Café

Good Afternoon!

Christmasing with the family this weekend. Stayed up until after 2:00 talking with sons 1&3. The bed was so hard that I contemplated sleeping on the sidewalk. Pretty sure it would have been softer.
Today we went to a children’s museum. There were 7 kids and 8 adults, so we each kept eyes on a specific kid and my mom (Great Grandma) was the floater. Next on the agenda is lunch, then gift opening, followed by looking at Christmas lights and having a pizza party.

I hope you all are having a blessed weekend as well!
 
Jeter woke me early this morning asking to go out. I discovered that during the night she had vomited the wrappers from the Tandy Cakes. One less thing to worry about. She's been eating, drinking, pooping and peeing normally so I think that all is okay with her.
I have a cat that loves to eat plastic wrappers. No idea why.
 
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Thanks @LTAY1946 for the coffee but I do have to admit as of right now there's only 1/2 pot remaining.
Later today FH and I are going to do a little bit of Christmas shopping then going out to eat at Texas Roadhouse.
 
Good morning Cafe and thanks for the coffee.

Sis and I are going to see DH today. She is going to give me her opinion about starting hospice now or waiting a bit. He qualifies because of the severe AD and (the now untreated) stage 3 unfavorable prostate cancer. We stopped treatment this summer.

The pros of starting hospice:
  • the nursing home will be accountable for all they are doing (or not doing) because the hospice team will be all over them.
  • aides from the hospice team will come in multiple times a week to help bathe him and assist with his care.
  • he will receive comfort care from the doctors/nurses of the hospice team regardless of the doctor's orders at the nursing home.
Cons of starting hospice:
  • if DH gets an infection again, he will not be sent to the hospital.
  • He will not have IV's started for any reason.
  • Only oral medication will be administered so if he gets an infection, an oral antibiotic is all that can be used, which may or may not work.
Sis (and the palliative care team lead) explained to me that nearly all AD victims ultimately succumb to infection and the number one infection that takes them is aspiration pneumonia. DH has (had) pneumonia but not aspiration and only in the lower right lung. It's gone now that he's been on antibiotics (IV drip). Both palliative and hospice care provide comfort care. The whole point to it keep a person as comfortable as possible as nature takes it's course.

I'm just so torn as to what to do. DH has drastically declined but my heart and mind keep clinging to the memory of who he WAS not who he IS. Sis is going to evaluate the situation as a skilled, experienced hospice nurse and help me through the decision making process. I need to do what is right for him, not me.
 

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