grannys gone and done it

[Wishing4Wings]

Good morning h2o. Expecting high temps again today?

 

[Granny Hatchet]

ay, caramba! Read about it. Count your lucky stars you have an unusual presentation, and not even as bad as non-classical. No wonder you put salt on your fruit!

You would be amazed at some people only knowing a little bit about CAH and making big assumptions. LOL I have had a rough life because of this . Not much was know about it back in the day. I was used as a guinea pig and that was ok because I wanted others to benefit. Nothing pleased me more then the fact it takes a gene from Both parents to have this. It was either very rare or misdiagnosed most the time. This is why the drs. called my children miracles .

 

[Granny Hatchet]

Mornings,

 

[campingshaws]

Morning granny!

 

[Granny Hatchet]

Morning granny!

how are you ? I am just up. LOL

 

[Wishing4Wings]

Quote: Makes you think of all the poor people who have suffered by not being diagnosed, especially when the disease presents differently like yours. Genetic testing now can find a lot of problems early. There is a show on one of the learning-science type channels called Mystery Diagnosis, where the people tell the story of what they went through to be diagnosed properly. Sometimes is just linking up with the right doctor, but mostly it comes down to ruthless persistence of the person. The have to keep going in and demanding more tests, etc.

 

[Wishing4Wings]

Mornings,

It is morning!

I need to get outside and get things done before it heats up. Going to eat breakfast first, though. Back in a sec with my Cheerios!

 

[Granny Hatchet]

I have to go to town today. CB feeds the chickens most days and I went yesterday just to discover we have very little feed. .
DS will be 23 tomorrow ! It dont seem possible to me. I still treat him like a 4yr. old sometimes. LOL But I do Tom too .

I was hoping for gas money to get my meds but thats ok. I need other stuff worse. Wish I could get him what he wants for his birthday but I just cant. He wants a pistol. I see no reason for it except to kill . He will just have to settle for brownies and a wonderful dinner thanks to Wishing. My mouth has been watering for that but I hung on til Tomorrow !!!! LOL I gave him some cash at the first of the month and he bought something for his game system. I dont have a clue.
I stopped having birthdays for DD when she was 16. I still bought her something but not a big todo . She asked me why Robert still gets cake/ect... I said, I stopped with you when you decided you were big enough to lay with a man. Robert isnt that big yet.

 

[Granny Hatchet]

Makes you think of all the poor people who have suffered by not being diagnosed, especially when the disease presents differently like yours. Genetic testing now can find a lot of problems early. There is a show on one of the learning-science type channels called Mystery Diagnosis, where the people tell the story of what they went through to be diagnosed properly. Sometimes is just linking up with the right doctor, but mostly it comes down to ruthless persistence of the person. The have to keep going in and demanding more tests, etc.

I was living in Ga. having passed out /lost time while driving with no help. Dr. in detroit agreed to take me on free of charge at Henry ford hospital. I still remember his name. Dr. Max Wisgerholf. Top endo around . He diagnosed me and used me as a guinea pig. /teaching tool. All my blood work had to go through Mayo . I am supposed to still be seeing someone but the rides here are long . Louisville I think is where they wanted me. My old dr. that left worked with endo and that was a big help. I need extra med. when my body is stressed like the test I had the other day and I didnt get it. MAYBE why I slept so much ? IDK

 

[Granny Hatchet]

I am going to brush the tangles from my hair and hit the road. BB later. Have a great day.