WOAH! You've got alot on your plate. Why don't you consider going to the doctor. Maybe you need an antidepressant to handle all the stress.....No shame in asking for help for yourself. I speak from personal experience!
Take one day at a time, that's what I have to do. Life is just soooo busy.
Thanks for all the nice words. I feel very alone at times as so many are dependant on me for all sorts of reasons.
The last thing I need is antidepressants. I am not depressed just knackered and not doing to well in juggling everything. Last thing int he world I need right now is to be popping pills especially when I have to keep track of the twins epilepsy pills and Dhs heart pills and mind Dds depression. God no can;t go down that darn road. Prefer a nice bottle of wine or a beer to relax. ( Alcahol is a depressant so wouldn;t be doing that if I was! And I don;t dare drink too much as have to function darn can;t even get drunk! Plenty of room in this bottle whoever wanted to dive int here with me! Sometimes its a solice to just drink a glass of wine or beer and try to relax a while but I always have much on my mind to be getting done. never ends. I am now for showering DS our very handicapped boy who is dirty again at 24 yrs its not a nice thing to have to do. Then I will spoon feed him his supper and sing tigger song before his bedtime. Then we will rig the camera so we can monitor him in the night from our bed. - Never thought it would be this way when I had a beautiful baby boy! Twins - the other one was here earlier demanding to be driven to the store! I had to explain for the umteenth time that it was daddys rest time and he was ill and would not be driving anyplace! Brain injury is so darn tiresome when you have to explain things for the hundreth time cause the info leeks out of his left ear!!!
Got time with DH we sat together and cuddled we can;t fight for long - we have to keep this darn boat floating!
I don;t actually sadly think things will get better fast or anytime soon. - Thing is things with handicapped kids tend to get a lot harder over time especially as they grow from managable children to very unmanagable children in adult bodies! That and the added stress of DHs health issues isn;t going to go away. I know that.
I just need to figure some better survival stratagies. This last two weeks have been hell really as DS has been home from the adult centre and with increased Fits and also his bitting and nipping his own arms and all that carry on and with the teeth being damaged its all been very intence. I can;t tell you guys how glad I was to see the adult centre bus come get him this morning. - Then I had loads of issues about his meds to sort because apparently they are NOT ALLOWED to hide his tablets in his food??????
(They don;t usually have to give him pills at the centre but his meds have been upped due to increased seizures and his history of status which is when he doesn;t come out of fits just rolls on into the next one etc)
- He isn't going to be mentally able to understand getting a pill or what its for???? He functions at 18 months of age????? What difference does it make if the darn pill is given on a spoon or hidden in food??? - Well the centre manager phoned and said she wasited 2 pills trying to get him to take it because she couldn;t hide it in his food so he was sent home without having had his seizure pills??????? Why because of some daft regulation that would rather put a kids life at risk than hide his pill in some darn yogurt!!! So now I have to go get the DR to write to the centre telling them to hide his pills in his food or they can;t give him his meds - AHHHHHHHHHHHHHHHHH see added stress because folk are NOT able to use there common sence and these rules are obviously made up by some tree hugging, health and safety, human rights idiot, officer somewhere who has NEVER HAD A CHILD WITH SPECIAL NEEDS!!!!!!!! What matters is that the pill is inside the boy who cares how the darn thing gets there! - Right?
See how easy I get stressed up !!!!!!
Need to chill - !!!!!! Need a holiday - need a whole new and different life!
You and your family are in my prayers.... Does your son's adult centre have any programs to help the care-givers? Are there any support groups for you? I started to say you need to take care of yourself too, but I know how hard that is when you take care of everyone else!!
theresa
Oh, my goodness, you have so much on you! Are you able to get any respite care, so you and your husband can get out for an evening, or take a nap? Are you able to get a respite care grant?
Can you get any church group, caregivers support group, or NGO that can help with some things - even housework and shopping?
Wish I could do more than ask questions, but being on another continent limits one's support!
I'm so sorry you're going through all of this. I don't have any advice, but you're in my thoughts. I hope things improve for you soon. Take care of yourself.