Needing hugs and prayers - GOD WHY do U DO THIS?????????????????????

[Boyd]

I'll update tomorrow

Sort of having a moment today and can only think about sillyness

 

[wyliefarms]

Quote:
Enjoy your moment of sillyness

 

[Chew593]

I'm believing in God's perfect plan and sending prayers to you, your family, and her care providers.

~J

 

[LauraSBale]

Quote:
Boyd,
oh your bring tears to me,
I took my son to his 18 month check up and the doc felt that his right kidney felt large, so he sent us right to st johns hosp in Det, did a ultra sound and that night he was checked in the hosp, and we are being told that there is a tumor on his kidney, 2 days later they removed the kidney and adrenal gland, 3 days later they told us he had Clear cell sarcoma, and that we were lucky that the doc felt it, thats its a very aggressive cancer, and his next check would be in 6 months and by then it would have been through his whole body, 5 days later he started chemo and radiation, we just sold are house on the east side and bought a house in Byron, for the next 6 months i took him down to st johns in det for 6 days of chemo, i would stay in the hosp with him. every 10 days we did this, and give him injects and clean his broveac the tub that came out of his chest and in heart to him main vain to put the chemo in,.

when the chemo was done a month later i finally broke down, and asked God why this happened to him,. every body always asked, how do you stay so strong, I just said i have to for Christian if i break down who will take care of him, i dont have time to think, just thinking of him,

i cried for weeks, i finally talk to his doc about every thing that Christian has been through, all the test and poking and probing and you know, he said, dont blame your self, or any thing you did, or God, its the environment we live in, the air, the water, the pollution, the additives in are foods, and he said what you need now is for God to help pull you together so you can go on and be Strong. and for 7 years Christian still had to have test, ultra sound, scans done.
I know what i went through doesn't help you and your family at this time in your life.
but if i didn't have God and my angles and Christian angles around me, I wouldn't been able to be a good mom and take care of just him for those 6 months, and every time he had test after that.

its alright to mad angry frustrated,

but dont what if yourself its not worth it,

day to day is what you need to do now and keep the faith, sometimes thats all we have to have make through the day.

your daughter will be in my prays and heart.

Laura-

Your story is an inspiration. Thank you for sharing. How is your son doing now?

Sarah

Sarah
at the time he was 18 months, he is now 15 years old, I pray every day, thanking God that it didnt come back, 99% of the time with this type of cancer, the child doesn't make it or it comes back.
where very lucky.


Boyd, Silliness helps us through the day

 

[wyliefarms]

What a blessing Laura!

 

[LauraSBale]

Quote:
Yes and thank you

 

[Boyd]

Ok, I finally am ready to write this all down

It is definitely Hodgkin's disease, with a huge tumor originating from her left lung, and according to ct scan the right as well. Yesterday we spent half the day there so they could do the bone marrow aspiration, and that concludes the testing. We now have a baseline to compare with once treatment starts.

The oncology nurse told us the normal protocol for this (and expects Ash to do as well) is to start chemo in a cycle

Week 1
day 1 12 hours intense chemo
day 2 3-4 hours chemo
day 3 3-4 hours chemo

Week two

Day 1 - 3-4 hours chemo
day 2 - 3-4 hours chemo
day 3 3-4 hours chemo

Week 3

Rest

Week 4 start all over again.........

So it looks like we'll be able to have her stay in school, and it would be pretty neat if we could schedule the chemo to begin on a sat-sun since she doesn't want to miss her nursing classes.

 

[sfw2]

Still praying for Ash, and the rest of the family. I would imagine it's very hard NOT to be angry at a time like this.

God bless!

 

[gumpsgirl]

I'm glad you guys can start focusing on her getting better now.

I would play the school thing by ear though. Check with the doctors to see if they want her exposed to germs that much, especially since her chemo treatments will be so frequent. It will also depend on how her body reacts to the chemo, whether or not she will feel like going to school. Fingers and toes are crossed here that she will take it well.

 

[horsejody]

More prayers said. Please keep us posted.