I am so sorry! You are all in my prayers!
Our Grim Situation
- Thread starter ninjapoodles
- Start date
I am at a loss for words. The only thing, and perhaps the most helpful thing I can do for you and your family is pray for you. I wish you the best and will be thinking of you, also.
God Bless...
God Bless...
Ninja, so very sorry...your blog site was heartrending! I will be praying for you and wracking my brain to think of the possibilities.
I am praying that it is something that was just missed and will be easily corrected.
I will be praying for a diagnosis and a cure, or that you find the strength to cope and endure if the outcome is not favorable. Hugs to you!
A link you might want to explore to see if something rings a bell:
http://myweb.tiscali.co.uk/ataxia.pages/index.htm
I am praying that it is something that was just missed and will be easily corrected.
I will be praying for a diagnosis and a cure, or that you find the strength to cope and endure if the outcome is not favorable. Hugs to you!
A link you might want to explore to see if something rings a bell:
http://myweb.tiscali.co.uk/ataxia.pages/index.htm
A quote from the website:
Cerebellar Ataxia/Degeneration/Atrophy
The cerebellum has traditionally been thought primarily to coordinate movement (motor function and control, muscle tone, coordination and balance). However it is now recognised that certain diseases that cause ataxia/degeneration/atrophy (shrinkage) of the Cerebellum can also affect intellectual abilities and emotions. Memory, judgement, attention, language skills, emotions, anxiety and depression may be affected. Often a Neuro-Psychological Assessment may provide a valuable insight into any of these intellectual or memory problems.
"As well as the typical drunken movement/speech/coordination problems that are present in all SCA patients, I find that this disease has affected my mind in all of the ways mentioned above. My mental health (intellect) symptoms mainly involve random memory loss (mainly short term [but this does not always seem to be the case]), difficulty with emotions (especially depression/anxiety), panic attacks, difficulty in comprehending and following conversations (especially with recall), inability to make decisions, difficulty with explaining things."
Cerebellar Ataxia/Degeneration/Atrophy
The cerebellum has traditionally been thought primarily to coordinate movement (motor function and control, muscle tone, coordination and balance). However it is now recognised that certain diseases that cause ataxia/degeneration/atrophy (shrinkage) of the Cerebellum can also affect intellectual abilities and emotions. Memory, judgement, attention, language skills, emotions, anxiety and depression may be affected. Often a Neuro-Psychological Assessment may provide a valuable insight into any of these intellectual or memory problems.
"As well as the typical drunken movement/speech/coordination problems that are present in all SCA patients, I find that this disease has affected my mind in all of the ways mentioned above. My mental health (intellect) symptoms mainly involve random memory loss (mainly short term [but this does not always seem to be the case]), difficulty with emotions (especially depression/anxiety), panic attacks, difficulty in comprehending and following conversations (especially with recall), inability to make decisions, difficulty with explaining things."
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My soul has ached a similar ache and I'll be in prayer on your behalf.
agape,
---john
agape,
---john
I too know what having a ill hubby is like. Prayers to both of you. Make sure you have an outlet also. Someone to lean on for you, someone to express your fears, concerns and emotions. We get so caught up taking care of our loved one, being the rock, that we forget about ourselves and keep our emotions hid away. Having an outlet will relieve some stress and help you deal with the other comings and goings of the day better. It was hard for me because hubby was always who I shared everything with. I had to learn to let go and trust friends and family to be my support. - Praying that it is something easily cured for you guys.
Quote:
I encourage everyone to start working them. I've gotten one of my daughters to start them - she's a 4.0 grad student now a Psychologist and she says she can't work them but I encourage her to keep it up. When I first started them I thought only really old people or rocket scientists must be able to work these things - they are so hard. But the trick is to think differently.
Everyone should exercise their brain especially in this world of computer/internet; television; ipods; video games, etc. - they rot your brain. People aren't having to think and figure things out anymore or remember names and phone numbers. Everything is stored in some computer device. If everyone started brain exercises like crossword puzzles while still young I bet there would be less dementia and Alzheimers.
I encourage everyone to start working them. I've gotten one of my daughters to start them - she's a 4.0 grad student now a Psychologist and she says she can't work them but I encourage her to keep it up. When I first started them I thought only really old people or rocket scientists must be able to work these things - they are so hard. But the trick is to think differently.
Everyone should exercise their brain especially in this world of computer/internet; television; ipods; video games, etc. - they rot your brain. People aren't having to think and figure things out anymore or remember names and phone numbers. Everything is stored in some computer device. If everyone started brain exercises like crossword puzzles while still young I bet there would be less dementia and Alzheimers.
Just checking in to see how yall are doing. If you don't mind I am going to put Alex on the prayer list at church. I pray the doc's find the answer and Alex is soon on the road to recovery.
and
I am so sorry that you are struggling with this. A number of years ago DH was going through some scary health issues (he was young, as well). It took weeks for a diagnosis, and that time was horrible. Having a diagnosis will help, at least you will have answers and know where to go from there. It's heartwrenching to watch someone you love suffering and to feel helpless.
My thoughts are with you.
--Angie
My thoughts are with you.
--Angie
You and your family are in my prayers...
My prayers are you with you and your family. HUG HUGGLES!
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