Scared out of my mind and need to just talk it out.

[Three Cedars Silkies]

Sweetie, if they thought there was a remote possibility of lung cancer, they wouldn't have you wait 6 months for another CT.

Our Granny Donna has had a "chest cold" for over a year that seems to get better, then worse. She has been faithfully going to her physician and had multiple rounds of antibiotics. Finally a chest CT showed 2 large lung masses and she was told by her primary care physician that it was likely squamous cell carcinoma. She went to the pulmonologist (lung doctor) last week expecting the final hammer to fall but instead he said he thought it was probably a long standing infection. Bronchoscopy was done the very next day and he said he saw nothing to make him change his diagnosis. She is now waiting for final biopsy report this week.

I'm sharing this so you can see that an infection can cause lung nodules and inflammed lymph nodes that resemble lung cancer. Take a deep breath, rely on God for your source of strength and "don't look for spiders"!!

Keep us posted

 

[Sonoran Silkies]

I am shocked that a nurse would call with this information, and then get angry that you asked her to repeat the information and had questions. That is simply NOT protocol. There were no patients waiting in the ward, this was a doctor's office or lab nurse. You need to write a letter to the head of that practice and complain about the very unprofessional treatment you received from her.

I am so very glad you plan to see a doctor in whom you have confidence. Consider asking that the test be redone, or at the very least that the images be evaluated by a separate radiologist.

Many

 

[HeatherLynn]

We did alot of praying before bed last night. My husband has the attitude that it can be nothing but from the pluerisy because he says he is too stubborn to let it be anything else. I am up and waiting for my doctors office to open. She unfortunately does not have after hours number. It directs you to the hospital she is contracted with. I am going to tell her what happened with the other office. She is good friends and used to share a practice with her so I am sure she will say something. I have every intention of getting a ton more answers today. The hubby is already prepping to drive me into Louisville to see her. I am glad I asked the lab to send both doctors the report now so she will be able to see it when I call. I do appreciate the hugs, prayers and encouragement. I was just really defeated last night. I'll let you guys know what she says.

 

[duckyfromoz]

It must have been a worrying night for you and your husband.

Best of luck at the doctors today. I hope she can set your mind at ease and give you some positive information on exactly what is going on.

 

[cafe]

I think it mustn't be that serious since they are waiting six months for a follow up, but the way you were informed -- especially right before a weekend -- is deplorable and I understand why you are upset.

Several years ago, we discovered a walnut sized tumor on my son's leg and I was absolutely terrified. It turned out to be benign. He had surgery to remove it and spent six weeks in a cast/wheelchair (he was too little to be able to walk with crutches). That was when he was in kindergarten and he will be starting fifth grade in August -- completely healthy with a sound leg.

It was still one of the most traumatic experiences I've gone through, so I know how anxiety producing this kind of thing can be.

Praying that you will be able to get hold of someone first thing this morning who will compassionately and clearly explain your condition and that the news will be good and set your mind at ease.

 

[muddyhorse]

please let us know what you find out. we are waiting here for you. I loved the God is a broody hen reference a few posts back.

 

[Camelot Farms]

Adding my positive energy to the thread.

 

[Lunachick]

Heather - Yes, please let us know what you find out. I'm thinking of you.

I agree with the other posters, try not to worry.....I hope you get the answers you want.

 

[I have WHAT in my yard?]

Heather pleas elet us know what happens and please please let your doctor know about the nurse's attitude problem. Doctor's lose patients all of the time over bad nurses and they don't know so they can't fix it. I had a chat with my doc over one of his office staff. I was very specific about dates and times and exactly what I found to be objectionable. Next time I went in she did not work there any more. He thanked me for letting him know before she got him sued!

No doctor would have a nurse deliver a caner diagnosis over the phone. Clearly no one there thought it was urgent. However, I understand your concerns and think you are completely entitled to a full and thorough explanation! From a doctor. Sending good thoughts your way! Please let us know.

 

[HeatherLynn]

Ok well I did not get to talk to my doctor. I talked to the nurse who the doctor asked to call me. Here is what I now know. The other doctors office got pretty much everything wrong. I have a single 3 to 4 mm non calcified granuloma and a group of 3mm or less granulomas. I am told this is very very small and that is points to an infection, possibly one that is not even cleared up since my last doctor did not feel the need to treat the pleurisy more than the ER had already done. I have an appointment to talk to the doctor tomorrow. The nurse said the doctor said it was not an asap situation but to schedule me earlier to ease my mind.

The non calcified part scares the heck out of me. One of them being single scares the heck out of me. The size is comforting because it is very very small. She said that it had already been reviewed and that the report indicated that it was benign in nature. Not sure how much they can tell really. So I guess today I am going to put this behind me and escape with the kiddies for some distractions. I will talk to the doctor tomorrow and then I am going to insist on a referral to a specialist just in case.

My oldest is a bit scared. He has been listening in when he was not supposed to so we are now sharing what we know with him so he gets the whole story rather than just overhearing little bits and pieces. Poor kid is praying as much as I am right now. I guess we just keep praying and wait till tomorrow to find out more. Still scared out of my mind.