Knowledge is power, right? 
Have a great day!
Should I buy eggs or wait it out?
- Thread starter okallthis4eggs
- Start date
Knowledge is power, right? Have a great day!
It is, and I'm smart and strong, determined to go on for years and years!
We had a lovely meal, and interestingly, the doc who dx'd me with CSS was sitting at the next table. I merely whispered that to my mom, we wouldn't disturb her on her day off... Back at the hotel now, relaxing and reading the paper... We'll take in a matinee and share popcorn. It's been especially nice to have this time with my mom.
We had a lovely meal, and interestingly, the doc who dx'd me with CSS was sitting at the next table. I merely whispered that to my mom, we wouldn't disturb her on her day off... Back at the hotel now, relaxing and reading the paper... We'll take in a matinee and share popcorn. It's been especially nice to have this time with my mom.
Any progress has got be satisfying. Hope you and your mom enjoy the movie!
Just curious, what have the doctors said about Auto-brewery syndrome?
Just curious, what have the doctors said about Auto-brewery syndrome?
they didn't say much about auto brewery, although, they have all heard of it. the endocrinologist suggested that once we have the mess sorted out, I could try reintroducing certain food back into my diet, and bread with yeast... see if it recreates it, not necessary to test me for it, unless I wanted to... and I didn't, so if I do try certain foods and it causes the problem, that's sufficient for me to know that I can no longer eat it.
now... they found a parasite. it's one I've had before and can be contracted by a number or sources, Celiac's are particularly prone to it (to any parasite...) so they don't know how I got it, but I've been given a one time dose of very potent antibiotics. it was either that, or another antibiotic 3x a day for 10 days. I had no trouble with the strong one time dose, so... glad that's done. the parasites are dead, and just need voiding over the next few days. that partly accounts for the weight loss.
CSS... is a disorder of it's own, but also used as an Umbrella term to cover many chronic pain syndromes. Fibromyalgia is one, so is Chronic Fatigue. looking back over the years, CSS is what has been my problem all along, just progressively getting worse each year, and now, going on 9 years, untreated... it doesn't get much worse than what it is without my losing the ability to walk or feed myself, do basic activities of daily living... and I'm still quite strong, which surprised them. the majority of the weight loss is attributed to CSS, and it's essential that I gain back, but slowly. I'm close to a bmi of 16, just on the line of 17. when it gets that low, the body decides, for survival, what it no longer needs... don't want it chucking my immune system to keep my heart and brain alive... and gaining too quickly will put a strain on my heart. I look like a survivor of a concentration camp. or someone who is at end stage of a terminal illness, except for my strength. baffling to them. I blew them away when they sent me to a neuropsychologist for testing. some memory issues were evident and not really related to my age... but everyone after that, understood my capacity for learning touched all areas and that I am extremely intelligent. no more talking to me like I'm an idiot... the nutrition counselor got an earful. her information was sorely out of date, and clearly, she hadn't read through my reports from the other doctor's before meeting me. I just smiled. shook my head... I got this.
anyway! I'm home! got in last night, we all went to Red Lobster for supper, My folks, my brother, Oma, Wrangler and I... it was a happy reunion and then to get home - which it is... not just a house, but Home... it was Sublime! the animals were so happy, the rooms look so good, of course, there is still lots of unpacking to do and pictures/paintings to put on the walls... but the place is so welcoming!
I got to take Wrangler to school this morning, and while she makes Oma drop her off at the gate "I can do it by myself..." she wanted me to walk her all the way to the playground, or even all the way in so I could meet her teacher... (I'll meet her teacher after school) when she got to the playground, a few little girls were so happy to see her, they started running over - Wrangler hollered "my Omi is back from the Mayo Clinic!!" and I was hugged by several adorable 1st graders.
back to unpacking as the day is flying and Mylee is due to be picked up in 2 hours... I'd love to sneak in a short rest in between if possible!
Love you guys!
now... they found a parasite. it's one I've had before and can be contracted by a number or sources, Celiac's are particularly prone to it (to any parasite...) so they don't know how I got it, but I've been given a one time dose of very potent antibiotics. it was either that, or another antibiotic 3x a day for 10 days. I had no trouble with the strong one time dose, so... glad that's done. the parasites are dead, and just need voiding over the next few days. that partly accounts for the weight loss.
CSS... is a disorder of it's own, but also used as an Umbrella term to cover many chronic pain syndromes. Fibromyalgia is one, so is Chronic Fatigue. looking back over the years, CSS is what has been my problem all along, just progressively getting worse each year, and now, going on 9 years, untreated... it doesn't get much worse than what it is without my losing the ability to walk or feed myself, do basic activities of daily living... and I'm still quite strong, which surprised them. the majority of the weight loss is attributed to CSS, and it's essential that I gain back, but slowly. I'm close to a bmi of 16, just on the line of 17. when it gets that low, the body decides, for survival, what it no longer needs... don't want it chucking my immune system to keep my heart and brain alive... and gaining too quickly will put a strain on my heart. I look like a survivor of a concentration camp. or someone who is at end stage of a terminal illness, except for my strength. baffling to them. I blew them away when they sent me to a neuropsychologist for testing. some memory issues were evident and not really related to my age... but everyone after that, understood my capacity for learning touched all areas and that I am extremely intelligent. no more talking to me like I'm an idiot... the nutrition counselor got an earful. her information was sorely out of date, and clearly, she hadn't read through my reports from the other doctor's before meeting me. I just smiled. shook my head... I got this.
anyway! I'm home! got in last night, we all went to Red Lobster for supper, My folks, my brother, Oma, Wrangler and I... it was a happy reunion and then to get home - which it is... not just a house, but Home... it was Sublime! the animals were so happy, the rooms look so good, of course, there is still lots of unpacking to do and pictures/paintings to put on the walls... but the place is so welcoming!
I got to take Wrangler to school this morning, and while she makes Oma drop her off at the gate "I can do it by myself..." she wanted me to walk her all the way to the playground, or even all the way in so I could meet her teacher... (I'll meet her teacher after school) when she got to the playground, a few little girls were so happy to see her, they started running over - Wrangler hollered "my Omi is back from the Mayo Clinic!!" and I was hugged by several adorable 1st graders.
back to unpacking as the day is flying and Mylee is due to be picked up in 2 hours... I'd love to sneak in a short rest in between if possible!
Love you guys!
oh and we saw Florence Foster Jenkins, which was really superb, then on Sunday, we saw Ben Hur. total sensory overload, too confusing, too violent and whirling... neither of us liked it.
Wow, Cheeka! Just, wow!
So glad you are home! So happy for you in general!
So glad you are home! So happy for you in general!
I can't compare to you, but I can tell you that the extra drakes are finally leaving this weekend. All five!
The new babies are doing great with the two moms.
Nine Silver Pencil Rocks.
Duckling is potty training on her own. Peed last night, and pooped today. Asked for underwear after her nap. It's a pull up for now. Training pants when she gets serious.
She made sugar cookies yesterday. She did most of it herself!
The new babies are doing great with the two moms.
Nine Silver Pencil Rocks.
Duckling is potty training on her own. Peed last night, and pooped today. Asked for underwear after her nap. It's a pull up for now. Training pants when she gets serious.
She made sugar cookies yesterday. She did most of it herself!
Welcome home Cheeka!!!
Your post made my day! After all the hard work and heartache, you couldn't ask for a better homecoming, and the future looks bright. Wrangler has made friends so quickly, and you got 1st grade hugs
. It's a wonderful age, and you get to be a part of it every day, much to Wrangler's benefit, too. Glad Mayo found a problem that could be dealt with immediately. Parasites suck! (get it? they suck?
) Gaining weight and more strength will make dealing with any other diagnoses that much easier. Home is the best place to be for that. I've been thinking of you guys as the 3 Musketeers... all for one! Looking forward to more Musketeer adventures. Pass along an extra hug for Wrangler from me.
ps. happy to hear Florence Foster Jenkins is good. I don't often go to the movies because the boys like those sensory overload type action flicks. I make hubs take them! Saw the ads for FFJenkins, and it looked interesting. Maybe I can get my sister to go with me.
Your post made my day! After all the hard work and heartache, you couldn't ask for a better homecoming, and the future looks bright. Wrangler has made friends so quickly, and you got 1st grade hugs
ps. happy to hear Florence Foster Jenkins is good. I don't often go to the movies because the boys like those sensory overload type action flicks. I make hubs take them! Saw the ads for FFJenkins, and it looked interesting. Maybe I can get my sister to go with me.
I can't compare to you, but I can tell you that the extra drakes are finally leaving this weekend. All five!
The new babies are doing great with the two moms.
Nine Silver Pencil Rocks.
Duckling is potty training on her own. Peed last night, and pooped today. Asked for underwear after her nap. It's a pull up for now. Training pants when she gets serious.
She made sugar cookies yesterday. She did most of it herself!
Silver penciled rocks are at the top of my list when have room for more. So beautiful, and rocks, which I like as a breed. Are they very broody? I have to find a local source for them, or maybe get hatching eggs next year when the inevitable broodies start broodifying. Plans plans plans.
My goodness, I would think Duckling is much older than 2 with all that she is doing. I love the pink apron!! You are giving her so many awesome experiences. She's so lucky to have you around. (Haven't said that in awhile.
MC, you probably saw this in Sally & Mike's thread, but with wonderful Wrangler and her huggy classmates and darling Duckling doing all sorts of cool stuff, I wanted to share this one again.
They all start out so good.
It's up to us to keep them that way.
They all start out so good.
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