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Thank you for the reminder! Was up extra early this morning for a trip to the ER for hemorhaging, then to the primary Dr where I finally learned the hospital had taken him off all the crohns medicine. I can barely get food in him and he hardly talks anymore. I wasnt sure if his mouth hurt so much or if it was his appetite.
So discovered He has crohns ulcers in the mouth and throat and it hurts to much to eat and talk. He needed to stop the humira for the fevers to come down but since the hospital knew he was having cognitive issues it would have been nice if they would have updated me. The Dr read it in the office notes.
He has a huge weight loss and was already skinny. The hospital didn't treat his mouth even tho he wasn't eating there either. The GI gave an appointment this afternoon so he's back on his meds& lidocaine mouth wash so he can eat. The hospital hadn't written directions about taking the humira again on the discharge papers so I had no idea. Maybe this is a step forward for a change instead of feeling like I'm losing. The Drs say eat anything! Even food that isn't healthy, please just eat!
I am so sorry. No excuse. The hospital dropped the ball and it isn't the first time I've heard of something like that happening. Where I worked back in Illinois, luckily before I started working there, they had a patient discharged from the hospital to the facility who had had a kidney transplant. The hospital didn't fax the orders for anti rejection drugs along with the discharge orders. By the time the omission was caught it was too late. The patient died from kidney failure.

From that point they were calling the hospital upon receiving discharge orders, we called them, verified the number of pages faxed and read back the discharge meds to confirm we had received everything we needed. No more problems even though it meant more time on the phone and less with our patients.

DO NOT TRUST THE HOSPITAL. Never never never. I'm serious as a heart attack when I say that. They are overworked and understaffed and mistakes happen. They dropped the ball and your husband and you have suffered because of it. I'm so terribly sorry it happened to you.

If your husband likes pie, make him pie and let him have all he wants of it. A dietician once told me when my mom was terminal and losing weight that as long as the patient's blood sugars are normal, pie is the perfect 'calorie rich' food. It has all the food groups in it, fat, grain, fruit and veggies. Top it with ice cream or whipped cream and you have added dairy also.

I used to make my mom milkshakes with ice cream and a package of instant breakfast mixed with milk. Really gives it a calorie boost and the chocolate malts are delicious!

I'm glad that you got him to the doctor's and to the GI specialists and the Humira is on board again. Hoping and praying that he gets to feeling better. Take care of you, Lovesfarms. Prayers sent.
 
I am so sorry. No excuse. The hospital dropped the ball and it isn't the first time I've heard of something like that happening. Where I worked back in Illinois, luckily before I started working there, they had a patient discharged from the hospital to the facility who had had a kidney transplant. The hospital didn't fax the orders for anti rejection drugs along with the discharge orders. By the time the omission was caught it was too late. The patient died from kidney failure.

From that point they were calling the hospital upon receiving discharge orders, we called them, verified the number of pages faxed and read back the discharge meds to confirm we had received everything we needed. No more problems even though it meant more time on the phone and less with our patients.

DO NOT TRUST THE HOSPITAL. Never never never. I'm serious as a heart attack when I say that. They are overworked and understaffed and mistakes happen. They dropped the ball and your husband and you have suffered because of it. I'm so terribly sorry it happened to you.

If your husband likes pie, make him pie and let him have all he wants of it. A dietician once told me when my mom was terminal and losing weight that as long as the patient's blood sugars are normal, pie is the perfect 'calorie rich' food. It has all the food groups in it, fat, grain, fruit and veggies. Top it with ice cream or whipped cream and you have added dairy also.

I used to make my mom milkshakes with ice cream and a package of instant breakfast mixed with milk. Really gives it a calorie boost and the chocolate malts are delicious!

I'm glad that you got him to the doctor's and to the GI specialists and the Humira is on board again. Hoping and praying that he gets to feeling better. Take care of you, Lovesfarms. Prayers sent.
I can attest to absolutely horrific treatment by the medical institutions. Not mine but my dad's. It's not known by many that my dad attempted suicide the day after Valentines last year. He botched it and called 911. Paramedics airlifted him to Tampa where he stayed 3 weeks. 94 years old, having surgery to repair his jaw, palette and nose, trach and feeding tube installed. He was shipped off to an acute care facility and 4 days later was shipped back to Tampa because the 'plates' in his jaw has dislodged, he has a massive infection and internal bleeding they could not stop. After a few days of transfusions it was agreed to stop and let him go in peace. That day came Mar 14th.
My stepbrother who had POA spoke with the doctor and it was stated that he was 'probably' released from Tampa too soon. I just wonder what kind of treatment he received in the acute care facility. Dad finally got his wish a month after his attempt. I don't like the current healthcare system for beans.
 
That is heartbreaking @CSolis. Read somewhere that suicide is the permanent solution to a temporary problem.

Medicare allows 30 days in hospital then the patient has to be discharged to A)home or B)rehabilitation floor or nursing home.

It would be interesting to know the quality of care that facility he was put in. Not all are good just like not all are bad and human error happens. Unfortunately.
 
That is heartbreaking @CSolis. Read somewhere that suicide is the permanent solution to a temporary problem.

Medicare allows 30 days in hospital then the patient has to be discharged to A)home or B)rehabilitation floor or nursing home.

It would be interesting to know the quality of care that facility he was put in. Not all are good just like not all are bad and human error happens. Unfortunately.
Dad's temporary problem was his wife (13 years younger) was rapidly deteriorating from dementia. He was the primary care giver and had enough health issues of his own having both hips replaced and lumbar pain afterwards. So important that the care giver is taken care of as well.
 
DO NOT TRUST THE HOSPITAL. Never never never. I'm serious as a heart attack when I say that. They are overworked and understaffed and mistakes happen. They dropped the ball and your husband and you have suffered because of it. I'm so terribly sorry it happened to you.
I hate to be a Gloomy Gus but it's about to get worst with the pressure building from the Covid resurgence. DW and I are RN's and we shutter to think about people going through the system with no medical background.
 

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