I am so sorry. No excuse. The hospital dropped the ball and it isn't the first time I've heard of something like that happening. Where I worked back in Illinois, luckily before I started working there, they had a patient discharged from the hospital to the facility who had had a kidney transplant. The hospital didn't fax the orders for anti rejection drugs along with the discharge orders. By the time the omission was caught it was too late. The patient died from kidney failure.Thank you for the reminder! Was up extra early this morning for a trip to the ER for hemorhaging, then to the primary Dr where I finally learned the hospital had taken him off all the crohns medicine. I can barely get food in him and he hardly talks anymore. I wasnt sure if his mouth hurt so much or if it was his appetite.
So discovered He has crohns ulcers in the mouth and throat and it hurts to much to eat and talk. He needed to stop the humira for the fevers to come down but since the hospital knew he was having cognitive issues it would have been nice if they would have updated me. The Dr read it in the office notes.
He has a huge weight loss and was already skinny. The hospital didn't treat his mouth even tho he wasn't eating there either. The GI gave an appointment this afternoon so he's back on his meds& lidocaine mouth wash so he can eat. The hospital hadn't written directions about taking the humira again on the discharge papers so I had no idea. Maybe this is a step forward for a change instead of feeling like I'm losing. The Drs say eat anything! Even food that isn't healthy, please just eat!
From that point they were calling the hospital upon receiving discharge orders, we called them, verified the number of pages faxed and read back the discharge meds to confirm we had received everything we needed. No more problems even though it meant more time on the phone and less with our patients.
DO NOT TRUST THE HOSPITAL. Never never never. I'm serious as a heart attack when I say that. They are overworked and understaffed and mistakes happen. They dropped the ball and your husband and you have suffered because of it. I'm so terribly sorry it happened to you.
If your husband likes pie, make him pie and let him have all he wants of it. A dietician once told me when my mom was terminal and losing weight that as long as the patient's blood sugars are normal, pie is the perfect 'calorie rich' food. It has all the food groups in it, fat, grain, fruit and veggies. Top it with ice cream or whipped cream and you have added dairy also.
I used to make my mom milkshakes with ice cream and a package of instant breakfast mixed with milk. Really gives it a calorie boost and the chocolate malts are delicious!
I'm glad that you got him to the doctor's and to the GI specialists and the Humira is on board again. Hoping and praying that he gets to feeling better. Take care of you, Lovesfarms. Prayers sent.