Anyone here have Fibromyalgia?

Discussion in 'Random Ramblings' started by jackiedon, Oct 18, 2007.

  1. LoneCowboy

    LoneCowboy Songster

    Aug 26, 2007
    Longmont, CO
    I'm lucky, my rheum has a physician's assistant who actually has Fibro. She really understands, but she has NO MERCY for me. I get the exercise lecture everytime I go in. [​IMG] I do exercise, I work very hard, but it's not the kind that gets your heart rate up enough. That releases endorphins or something that helps with the pain. It's very hard for me to do that kind of stuff since I have a spur on my heal. Hurts to walk much.

    And yes, the weather is AWFUL! I was totally miserable last winter and I've very worried about this winter, because my DH is relying on me to do part of the snow plowing contracts we've picked up. Can you see that? Early mornings like 4am (I don't get enough sleep as it is) cold wet weather. I'm trying to put on my happy face and tell myself it's going to be ok.

    Hey, does anybody else have trouble regulating their body temp? When my feet get cold, I can't get them warm myself. If I put socks on, it's like I'm insulating the cold in.
    It can take hours for me feet to warm up at night, and I can't sleep with cold feet. I've been using heated rice packs or take a hot bath before bed. Just wondering if anybody else has that problem.
     
  2. hollyclyff

    hollyclyff Songster

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    May 18, 2007
    NC
    Hey, I don't have fibromyalgia, but I do have the same problem with my feet staying cold. I laughed at what you said about insulating the cold in with socks. That's exactly what it feels like to me too. I often sleep with a microwavable heat pack at my feet. And we don't keep the house cold either.
     
  3. bobbieguyette

    bobbieguyette Songster

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    Jan 12, 2007
    I also have bad problems trying to stay warm when its cold and you just gotta go out with the babies outside. sometimes wish i had feathers or fur to keep me warm! LOL! I use tights and sometimes 2 pair of socks and up to 7 layers up top its crazy but does get down to 30 or more below here too in NH. I wish i could find battery warmers to put in my boots.I cant imagine going on snow plowing jobs brrrr!! its so nice to meet others like me or ones that care for ones that do:D my hubby is great and helps me alot and hates to see me lose a bit more ability every year but understands but sometimes forgets and think I can move in the morning.I need at least a hour of sitting here letting the pain and muscle relaxers kick in and then can start my day.was a better day today at least the sun was out and in the 60s i can live with that easy:D
     
  4. LoneCowboy

    LoneCowboy Songster

    Aug 26, 2007
    Longmont, CO
    They do have battery operated socks. Check Cabela's or Bass Pro Shop. They will have them. [​IMG]

    Yeah, I use a microwaveable rice packs. Just sewed up some squares, and filled them with rice (feed corn or beans works well too) Microwave them for about 3 mins and life is better.

    Mornings are my worst time. DH wants his breakfast so sitting around trying to get going doesn't work too well for me. He does let me sleep in for a while so that helps. Poor guy, we've only been married for 2 years, and he didn't know what he was getting himself into. I didn't either at that point, no diagnosis then. I was feeling really good when we met, so didn't think much of it. Then a few months after, I had the worst flare ever. I think it was the stress. That's when they finally nailed the problem. Now he's stuck with me.
     
  5. EweSheep

    EweSheep Flock Mistress

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    Jan 12, 2007
    Land of Lincoln
    Sounds good on warmed rice but how long and would it burn?

    Warmth is great for me and my aching body. Crazy weather we are having!
     
  6. Rain causes Pain, My physio told me that she knows when the weather is about to change when she gets loaded with bookings!!!must be the dampness, I see it here on this thread when everyone says that they are having a bad pain day, that it is also raining!
    Something to think about and plan your days around.
    If the weather report says rain in the next few days you know you will be having a rough time then.
    But then you may be better at forecasting weather if you are starting to ache, you will know that the rain is coming.
    Im sorry you guys are having pain.
     
  7. LoneCowboy

    LoneCowboy Songster

    Aug 26, 2007
    Longmont, CO
    Quote:Just microwave it for 3-4 minutes. It doesn't burn, and it holds the heat really well. I sometimes use them when I have a migraine. They seem to help if I put it on the back of my neck.

    The nice thing about rice bags, is you can make the holder whatever size you want. Some people may a kind shawl looking thing that goes over their shoulders and a little down their back and make little tunnels for the rice, so they stay in the right places and then heat that and just put in over their shoulders. So basically you can make them anyway you want to fit what hurts. [​IMG] Or, for that matter, you can just use an old sock (no holes [​IMG] )

    Oh, don't fill them up tight with rice, just about 1/2 full.
     
    Last edited: Oct 20, 2007
  8. bobbieguyette

    bobbieguyette Songster

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    Jan 12, 2007
    THats a great Idea making rice squares I will have to do that thanks!And hubby knows hes in for a grumpy wife when it raining last week it rained for a whole week and boy oh boy was I miserable!!
     
  9. okiechick57

    okiechick57 Songster

    rice socks ! That is as simple as it gets.take an old sock,fill it with rice......tie the end and heat.............I use those all winter for my arthritic body........so nice and warm.......
     
  10. tazcat70

    tazcat70 I must be crazy!

    Wow! I am so sorry that you are all suffering from so much pain!!! I have a friend whose mother has Fibro. My friend was having to miss work alot to take her to Drs appts for morphine shots.

    I have some questions. I know that Fibro is an autoimmune disorder. I have had 3 miscarriages and on my 5th pregnancy my doctor finally tested for Antiphospholipid Antibodies. I tested positive. Pregancy was a success.

    My OB Doctor told me I didn't have to worry about it unless I started having joint pain. Well about 2 years ago...my reg doctor said that the painful clicking in my knee is arthritis.

    Should I be worried? I am not in pain all the time. When the weather changes, cold, rain, etc...well my knees and hands ache.

    I appreciate your thoughts in this matter, and I know that you all are not DRS but you are experienced in this, and alot of times that is better than the DRS. Who ignore what you tell them because they have the degree.

    Tonya
     

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