sorry gang. For those of you that dont know DS has persiodic fever syndrome and has been going through some med changes the past few weeks. Basically had a fever non stop for the last three weeks. High fevers. Last evening I got home from school and checked his temp when he woke up- it was 107.6. So yeah... even for him that's too high. Spent 16 hours in the ER for them to basically give him more tylenol, nausea medicine for his belly PAIN (if he doesnt have nausea how is that supp to help?! Which it didn't) and then be told by the ER doc that "IF he starts showing signs of appendicitis (which I guess is what they thought it was bc his belly hurts, even though it ALWAYS hurts with his fevers. Its part of the syndrome) then bring him back, otherwise continue to see his specialist about the PFS." Pardon my language but NO S**T?! I was thinking the fact that his fever was that high and organs were probably suffering some damage would mean something or at LEAST earn him some IV fluids to rehydrate his dry lil butt and maybe some pain medicine for the belly, not nausea meds! But nooooo nothing like that. No labs (which I'm sure his CRP probably 16-18 times the normal level as it usually is during his fevers), no fluids, no pain meds, not nothing. They sent him through triage at 7 and checked his temp when they checked him in there, then we sat in the waiting room for 8 hours before we even got back to a room...where they NEVER EVEN RECHECKED HIS TEMP! Grrr I'm such a mad mommy eight now. Needless to say nothing's changed. He still has fever, and belly pain and joint pain. And the sad part is, I WORK in that hospital and just covered a shift in the ER last week! I could not have been more upset with them.
Soooo anyway, my real point was I will look it up and post the link, and if you girls can't see the link just let me know and I'll try copying and pasting or something. I guess my weight should be good though since I didn't eat anything after lunch yesterday until 3pm today LOL
congrats!!!
