Honestly I think meeting her was good for her and for me. I think it really helped her in her last days and it helped me realize many things about life.
The weak vacation that we had with her was amazing. We went to Noah's ark that's in Kentucky, it was really fun. We actually rented scooters because most of it is inclined and back then I really couldn't do inclines but with my infusions I'm doing a lot better.
I'm probably one of the few patients that has pulmonary hypertension that doesn't need oxygen.
I pretty much moved to Virginia because of the doctors and the hospital that they have here. I think moving has really helped me too because of the weather that's why I can't really handle cold weather. It kills my lungs...
aww I’m glad you’re doing so well now!!

the pump that gives me my medication is not waterproof, but I have found a way to go swimming. My youngest is actually on a swim team and I love that he can do something that I used to do (I was on a swim team) and that I truly had a passion for. Now I don't have to worry about killing myself trying to swim because he can do it for me 

but now I can. I just don’t drink the milk after haha I could now though but I don’t really like it anyway. Someone else usually drinks it lol