BYC Café

[RoyalChick]

Good morning Cafe and thanks for the coffee.

Sis and I are going to see DH today. She is going to give me her opinion about starting hospice now or waiting a bit. He qualifies because of the severe AD and (the now untreated) stage 3 unfavorable prostate cancer. We stopped treatment this summer.

The pros of starting hospice:

• the nursing home will be accountable for all they are doing (or not doing) because the hospice team will be all over them.
• aides from the hospice team will come in multiple times a week to help bathe him and assist with his care.
• he will receive comfort care from the doctors/nurses of the hospice team regardless of the doctor's orders at the nursing home.

Cons of starting hospice:

• if DH gets an infection again, he will not be sent to the hospital.
• He will not have IV's started for any reason.
• Only oral medication will be administered so if he gets an infection, an oral antibiotic is all that can be used, which may or may not work.

Sis (and the palliative care team lead) explained to me that nearly all AD victims ultimately succumb to infection and the number one infection that takes them is aspiration pneumonia. DH has (had) pneumonia but not aspiration and only in the lower right lung. It's gone now that he's been on antibiotics (IV drip). Both palliative and hospice care provide comfort care. The whole point to it keep a person as comfortable as possible as nature takes it's course.

I'm just so torn as to what to do. DH has drastically declined but my heart and mind keep clinging to the memory of who he WAS not who he IS. Sis is going to evaluate the situation as a skilled, experienced hospice nurse and help me through the decision making process. I need to do what is right for him, not me.

So very hard. I am glad you have someone who is able to help you as you think it through.

 

[Sally PB]

So very hard. I am glad you have someone who is able to help you as you think it through.

Same. Sending hugs.

 

[DobieLover]

@DobieLover I'm here for you whenever you need another shoulder to cry on. Believe me when I say I know how hard it is when a person is on hospice care and thankfully someone close by you knows all about hospice care and you're not facing a difficult situation all by yourself. Sending you LOTS of

So very hard. I am glad you have someone who is able to help you as you think it through.

Same. Sending hugs.

Thanks.

 

[Ladies-Eight]

Cafe good morning one and all!

Tea is ready.

Temperature is in the 60s and cloudy.

Have a great day!


@DobieLover The decision you make will be the right decision for you and for him.

 

[Nomadicus]

@DobieLover may you find an answer that is right for him and also one you can live with. You know best what he would want.

Having a cup before I go out and ramble around some. Cold cloudy Sunday is a good day for resting and that I will do.

 

[Mtn Margie]

Hugs, DL...

 

[sourland]

Good morning. I've brewed a fresh pot of coffee. We are facing 24 + hours of rain here. Daughter's dogs went home last night.

@DobieLover Good to have someone professionally trained to help in your decision. It is difficult/impossible to think logically when love is involved.

 

[ShrekDawg]

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Thanks @LTAY1946 for the coffee but I do have to admit as of right now there's only 1/2 pot remaining.
Later today FH and I are going to do a little bit of Christmas shopping then going out to eat at Texas Roadhouse.

I love that place!!!

 

[ShrekDawg]

Good morning Cafe and thanks for the coffee.

Sis and I are going to see DH today. She is going to give me her opinion about starting hospice now or waiting a bit. He qualifies because of the severe AD and (the now untreated) stage 3 unfavorable prostate cancer. We stopped treatment this summer.

The pros of starting hospice:

• the nursing home will be accountable for all they are doing (or not doing) because the hospice team will be all over them.
• aides from the hospice team will come in multiple times a week to help bathe him and assist with his care.
• he will receive comfort care from the doctors/nurses of the hospice team regardless of the doctor's orders at the nursing home.

Cons of starting hospice:

• if DH gets an infection again, he will not be sent to the hospital.
• He will not have IV's started for any reason.
• Only oral medication will be administered so if he gets an infection, an oral antibiotic is all that can be used, which may or may not work.

Sis (and the palliative care team lead) explained to me that nearly all AD victims ultimately succumb to infection and the number one infection that takes them is aspiration pneumonia. DH has (had) pneumonia but not aspiration and only in the lower right lung. It's gone now that he's been on antibiotics (IV drip). Both palliative and hospice care provide comfort care. The whole point to it keep a person as comfortable as possible as nature takes it's course.

I'm just so torn as to what to do. DH has drastically declined but my heart and mind keep clinging to the memory of who he WAS not who he IS. Sis is going to evaluate the situation as a skilled, experienced hospice nurse and help me through the decision making process. I need to do what is right for him, not me.

 

[aart]

Computer now all of a sudden working flawlessly. WTF?
Maybe it was an ISP glitch rather than obsolete software??
Got some criticals taken care of and so will cancel(for now) my emergency run to walmart to buy a new laptop next week.