My prayers are with you and your husband. I know first hand the road you are traveling. My husband was diagnosed with ALS two years ago...he is now completely paralyzed and on a ventilator. The only thing keeping him motivated to keep going is he wants to see our daughter graduate. He is also participating in a medical device trial which will allow patients to move things using mind power. Anyway, your husband's struggle is yours as well. As his caregiver, you need to have time and space to take a break once in a while. You may also search the Internet for on-line support groups. I actually started a group ( ALS Caregivers) on Facebook. It's important to connect with others who are caregivers and they can share advice, resources and commaraderie at this difficult time.
My husband has COPD, RADS and now Sleep acniea..... never smoked, all military related. It can be very scary and hard to deal with for both of you. I would also look for opinions of other doctors....... new advancements pop up, and also new equipment that could better his quality of life.
