Another two for…

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Took this earlier of the light grey silkie chick and Penne.
 
I dont have a medical advocate. My hubby comes with me. They know the issue but we have to wait for the colonoscopy and i just got my pain pills.
My gallbladder doesnt function like a normal one and hurts when I eat or its full.
There has been some colitis but we dont know which kind.
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I think @BY Bob is talking about a third party - the Medical Advocate should be free for you (I think) and would be someone with that job within the medical group if it's large enough. It helps with complicated cases, and could help you immensely in explaining the choices and deciding on your care.

If you want my two cents, I'll bite.

I'd like to know if the doctors have been through their decision tree with you. Both on what the possible diagnoses are and what the tests will tell them, and how they are assessing the risk to you of the tests they have in mind. If it's been confusing, this is where a Medical Advocate might be good in helping you decide on care.

Given my own history I know doctors love data and love actual tissue sample data. I do not blame them. Me too, I tend toward the analytic type! But given my own experiences and friend's experiences: I'd want to know how helpful the results could be in deciding ACTUAL TREATMENT, and what the risks of the test are given YOUR state of health and what they suspect might be going on inside you.

I turned down one test in the middle of treatment because it was just going to be another signpost on the road for them, but wasn't going to be pleasant AT ALL for me, and it was not going to affect my course of treatment one whit. Things progressed nicely with my treatment, and I did consent to the test many months later to confirm recovery, but that was when I was feeling much better and able to withstand it. This was in the 80's, in the stone age of patient comfort.

Another example - my friend's father in his 90's was dying of widespread abdominal/colon cancer and had severe, really severe dementia. Docs wanted to do another colonoscopy. Just to see how far it had progressed. Family said no. They decided on just palliative care.

Bottom line, sorry I do tend to go on - Just because it will help confirm a diagnosis maybe it isn't always necessary to have every last bit of data before beginning treatment, especially between a treatment that poses little risk to try and a test that poses a greater risk.

In your case, given what you write about your symptoms, and how long this has been going on, I'd want to know how risky any given test could be, given the range of possible things they have in mind.

Then ask - How will the test(s) change treatment? If they're suspecting colitis (& Crohn's comes to mind) what is the treatment they would prescribe? Do they HAVE to confirm it through tissue samples before treating you?

If your intestine is in serious disrepair, or even perforated, and they go in there, how do they assess the risk of this test to you, when they're thinking about doing an invasive colonoscopy? Where will it be performed? Not in a clinic I hope. You're not the average patient. I'd want it done in a hospital, feet away from a ready operating room with a surgeon available. And if/when you go home, if home is far away, I wouldn't go home but try to stay at least overnight in the hospital, or in a nearby hotel.

OK that's my two, no- ninety-nine cents, what's been going through my mind when I've read your posts. I do not know why your care, even palliative care, has been so slow in coming, or why you have not been admitted for testing either. But it makes me mad that this is what you've been experiencing and I hope things go better for you soon. :hugs :hugs

Rant tax: pullets!

Bathing outside the box, they were sunbathing I suppose.
There are four there, see next picture!
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Just hangin' out
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Oh My Gosh!!!! I thought it was almost time - then yea that is likely a pip!!! Can’t wait until mama brings them out to the world!
Went out this afternoon and sat with her for a while and gave her some mash to munch on hoping to see a chick but nothing yet.

Escape Artist

While waiting for horses to eat, I was checking out FBA when I happened to see Martina fly up and bounce off the netting over their bin. Of course I laughed and told her better luck next time.

A few minutes later I saw her fly up and squeeze between the edge of the net and the rim of the bin! Amazing! Worthy of Eli and her flight abilities.

Well she looked at me with a smug chicken smirk and just stayed there while I laughed.


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She does look smug! Cute little trouble maker ❤️
 
Escape Artist

While waiting for horses to eat, I was checking out FBA when I happened to see Martina fly up and bounce off the netting over their bin. Of course I laughed and told her better luck next time.

A few minutes later I saw her fly up and squeeze between the edge of the net and the rim of the bin! Amazing! Worthy of Eli and her flight abilities.

Well she looked at me with a smug chicken smirk and just stayed there while I laughed.


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Twirp did something similar...while I was at work....came strolling back inside the coop after I'd had time to do a head count.....repeat.....and start searching the coop, beginning to panic. Gave me the same look as the pic, too. I created a hole for the babies to use and let them run with the bigs.
 

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