Two for Tuesday, well, sort of. The Marshmallow Stalker Mafia are almost always together as one unit. Complaining worked, in the last week there is signs of hope those combs are beginning to sprout.
DSCN0943.JPG

Here they are resting after a productive day terrorizing cats and songbirds. BY Bob should truly be thankful they do not live with him. The last thing Queen Aurora needs is this lot as her minions. It would not end well, for humans. Aurora would have a blast with them.
DSCN0945.JPG
 
I think @BY Bob is talking about a third party - the Medical Advocate should be free for you (I think) and would be someone with that job within the medical group if it's large enough. It helps with complicated cases, and could help you immensely in explaining the choices and deciding on your care.

If you want my two cents, I'll bite.

I'd like to know if the doctors have been through their decision tree with you. Both on what the possible diagnoses are and what the tests will tell them, and how they are assessing the risk to you of the tests they have in mind. If it's been confusing, this is where a Medical Advocate might be good in helping you decide on care.

Given my own history I know doctors love data and love actual tissue sample data. I do not blame them. Me too, I tend toward the analytic type! But given my own experiences and friend's experiences: I'd want to know how helpful the results could be in deciding ACTUAL TREATMENT, and what the risks of the test are given YOUR state of health and what they suspect might be going on inside you.

I turned down one test in the middle of treatment because it was just going to be another signpost on the road for them, but wasn't going to be pleasant AT ALL for me, and it was not going to affect my course of treatment one whit. Things progressed nicely with my treatment, and I did consent to the test many months later to confirm recovery, but that was when I was feeling much better and able to withstand it. This was in the 80's, in the stone age of patient comfort.

Another example - my friend's father in his 90's was dying of widespread abdominal/colon cancer and had severe, really severe dementia. Docs wanted to do another colonoscopy. Just to see how far it had progressed. Family said no. They decided on just palliative care.

Bottom line, sorry I do tend to go on - Just because it will help confirm a diagnosis maybe it isn't always necessary to have every last bit of data before beginning treatment, especially between a treatment that poses little risk to try and a test that poses a greater risk.

In your case, given what you write about your symptoms, and how long this has been going on, I'd want to know how risky any given test could be, given the range of possible things they have in mind.

Then ask - How will the test(s) change treatment? If they're suspecting colitis (& Crohn's comes to mind) what is the treatment they would prescribe? Do they HAVE to confirm it through tissue samples before treating you?

If your intestine is in serious disrepair, or even perforated, and they go in there, how do they assess the risk of this test to you, when they're thinking about doing an invasive colonoscopy? Where will it be performed? Not in a clinic I hope. You're not the average patient. I'd want it done in a hospital, feet away from a ready operating room with a surgeon available. And if/when you go home, if home is far away, I wouldn't go home but try to stay at least overnight in the hospital, or in a nearby hotel.

OK that's my two, no- ninety-nine cents, what's been going through my mind when I've read your posts. I do not know why your care, even palliative care, has been so slow in coming, or why you have not been admitted for testing either. But it makes me mad that this is what you've been experiencing and I hope things go better for you soon. :hugs :hugs

Rant tax: pullets!

Bathing outside the box, they were sunbathing I suppose.
There are four there, see next picture!
View attachment 3490736
View attachment 3490738

Just hangin' out
View attachment 3490739
I agree with all of this. :goodpost: That is why I was suggesting a patient advocate, provided by the health system. Free of charge.

My mother has been going through an awful journey complicated by physicians who did not care. My wife has had to fill the role of Patient Advocate, she is an RN, until this day as the health system does not have them. Without my wife it is safe to say my mother would be dead for at least 5 to 6 years at this point because of uncoordinated care.

There may not be one available to you but sometimes there is. I highly recommend checking into it.

20200714_100509.jpg
 
Finally all the momma's and babies are tucked in for the night. At just at 48 hours old Holly decided it was time hers were out exploring. She had them all over the back yard, horse stalls and sawdust pile. Momma hen is not ready to come off the nest yet so hers stayed in the crate today. I finally kicked Gryffyn and her 2 out of the coop. Gryffyn after initially being upset and mad at the world settled down and showed hers the ropes. She spent the majority of her time in the barn isle but did have them out on the creek bank digging towards the end. I swear she took them into Louis stall to show them off to him and he was such a good boy and stayed perfectly still while looking at them. Louis probably would have been happy if she had decided to sleep with them tonight in his stall but around 7 this evening she decided it was time to go back to the coop for the night. Tomorrow Goose and her 4 are coming out of the coop. She had them out briefly yesterday. They got 2 feet from the entrance and dad walked by leading Louis and she decided nope, not ready and back into the coop they all 5 went. Gryffyns black chick also is now for sure a silkie cross. It's wing feathers have lost the fuzz and are coming in as normal feathers dang it. I can say though that Goose does have a pure silkie chick thankfully.
Now for some pictures.
Holly and her 6 out back.
View attachment 3490764View attachment 3490765
Gryffyn showing off her 2 in front of Louis stall.
View attachment 3490766View attachment 3490767
Twig, Lilly and Raven meeting them, they got close but no pecking at all.
View attachment 3490768
View attachment 3490772
I will have to repost this one Friday, but angry Gryffyn pretending to be a tom turkey
View attachment 3490773
Such little darlings. 😍
 

New posts New threads Active threads

Back
Top Bottom