So here's the backstory. On January 31 I finally got name to put to the way I've been feeling. The enemy has a name, and it's name is Stage 4 Chronic Kidney Disease. Okay, an enemy with an identity is one I can fight. I haven't yet had a meeting with a dietitian. My next nephrology appointment is March 5th and he'll be setting me up with one then. I hope. In the meantime, I am supposed to watch my diet and stop taking some of the prescriptions I've been on. I want that GFR going up and the Creatinine going down! The problem is I don't know what to do to make it happen! And I'm hungry!!!
So I decided to start this thread. Out of the million members out there, I know there must be some who are in various stages of kidney disease or even, like my beloved sister Linda was, in full blown kidney failure. There has to be someone who is taking care of a person with CKD. Let's help each other. I mean, who out there knows how to make noodles with Bulgar wheat flour....or even more important, who can explain what the heck Bulgar wheat flour even IS? See what I mean?
I've been struggling along with information I've found on-line. When we'd go back to South Dakota on vacation, we stayed with my sister and I would take her to her dialysis. And when she was up to it I would take her grocery shopping. So I had some idea of what I could and couldn't eat, but the diet for full kidney failure and the diet for kidney disease have some differences. And to further complicate things, I'm a cardiac patient. That diet and the renal diet often conflict, except in matters of salt and the other obvious taboos. On dialysis diets folks have to be extremely careful of fluid intake...with the first stages of kidney disease fluids are strongly pushed, or so I've been led to believe.
So, let's go over things before we start. Here is what this page is:
A place to say, "Hey, I found a new recipe today and it was really good!"
A place to say, "I know, it stinks, but potatoes are off limits unless you leach them first. Here's how...."
A place to ask, "I'm going shopping today. What should I be looking for for snacks?"
That's it. Help. Encouragement. Information. Recipes. Hints. And just maybe some new friends.
Here is what this page is NOT:
This thread is not..... repeat, absolutely NOT..... a substitute for for the advice of your doctors or dietitian. Not now, not ever. And that reminder will pop up a lot. Expect it and respect it.
This thread is not a place intended to diagnose, treat, or "cure" anything. It's Kidney Disease. We have it. We can't cure it. We deal. The end.
This thread will remain civil, lighthearted when that's appropriate, serious when it's called for, and we will treat each other with courtesy and respect. There are
consequences for rudeness, sniping, and posts that hurt others. Period. No exceptions. I started this thread, and I can shut it down just as fast. (well, maybe faster - I type slowly)
I don't take points off for grammar, spelling, punctuation. If something is important enough or funny enough or supportive enough for you to want to say it, then what you are saying is important enough for me to want to read it. If I don't understand something, I'll ask. Please do the same if you don't understand me!
Brief periods off-topic are certainly allowed. Sometimes we need to lighten up and step back for a few minutes. But we have to remember that we will have people counting on us for help and support, so let's not linger off topic for long! I tend to be the worst offender. <sigh> Rein me in. Nicely.
All other rules established by BackYard Chickens apply. Please don't give out addresses, phone numbers, email addresses or other personal information in your posts. If you need to exchange such information with another poster, do so by private message - or "conversations" as they are now called.
That's it. I welcome warmly anyone who would like to be part of this thread. And you don't have to have kidney disease to join in. Support is always welcome and you are valued, whether you're a kidney patient or not. This is a heck of a lifestyle change for most of us who have been diagnosed, and friendly faces help tremendously. We might all learn something. Someday those of you who aren't personally invested in this now might be later, and what we all learn here as we go along might come in mighty handy! This is all new to me, so I will make mistakes in terminology, I will make mistakes in foodology. I will make mistakes in wordology. I will try not to make mistakes in personalityology. (I'm having a blast watching my little spell-checker dude have apoplexy over my made-up words!) So let's get started!
I'm Blooie. I've been a member here for a while now, although I was gone for the last 6 months as I started getting sick. I'm kind of a floater - I flit from thread to thread. I have made a ton of good friends on this site, and I anticipate adding to that number. I am having a lot of trouble with this renal diet. I'm beginning to hate blueberries, because every time I'm hungry, I end up with blueberries. <sigh>
For example, last night we had roast beef and veggies. I always make my gravy as my roast cooks, with everything together in the dutch oven....it's the way hubby Ken loves it. So the roast was ready. His plate had a couple of slices of beef, a mound of potatoes smothered in rich, brown gravy, and carrots with butter and salt and pepper. Mine? Well, I had to rinse off the beef and the carrots because there was so much gravy (my delicious gravy, too!) from being cooked together and the potatoes were cooked in with the meat and carrots. I didn't have any potatoes on my plate. I had a small slice of rinsed off beef, a few rinsed off carrots, and.....and....well, my plate looked pretty empty so I opened the fridge to see what else was in there that I could add. Blueberries. More doggone blueberries. So there I was at the sink, rinsing my entire meal before I ate it! I felt like a darned raccoon!
Blueberries - I am beginning to hate blueberries. I don't know if I had to rinse all that stuff off or not, but I did because I remember my sister doing it. She said that that's one of the few meals where she didn't leach the potatoes first, so the potassium and phosphorus from the potatoes would be in the other stuff. I dunno if that's right or not, but she was the expert as far as I was concerned so I never questioned it. I never had reason to until now. And the blueberries? Well, I don't know how to shop anymore, so the fridge and pantry are getting kinda bare. I want desperately to call Linda and ask her a million questions. I can't. Unfortunately we lost my little sister to her kidney failure in 2017.
I have chickens again after 2 years without them. And of course, just when those little pullets start giving me eggs, as of a week ago last Monday, I find that egg yolks are off limits. There is NO justice in a world where I can't dunk a corner of buttered toast into a runny egg yolk from my own chickens. Oh, well....I think that's one I'll just have to cheat on from time to time!
Well, there you have it. I'm floundering. I need you. And if the doctor and dietitian ever get their heads together and give me a diet I can understand and follow, I'll still love to get some help with real, people-really-eat-this recipes, and different ways to make salt-less meals without my beloved potatoes palatable, AND without using blueberries! And maybe I'll be able to help you! Maybe someone will come in and share just the solution you need. This isn't about ME...this is about US. Let's make it happen!
So I decided to start this thread. Out of the million members out there, I know there must be some who are in various stages of kidney disease or even, like my beloved sister Linda was, in full blown kidney failure. There has to be someone who is taking care of a person with CKD. Let's help each other. I mean, who out there knows how to make noodles with Bulgar wheat flour....or even more important, who can explain what the heck Bulgar wheat flour even IS? See what I mean?
I've been struggling along with information I've found on-line. When we'd go back to South Dakota on vacation, we stayed with my sister and I would take her to her dialysis. And when she was up to it I would take her grocery shopping. So I had some idea of what I could and couldn't eat, but the diet for full kidney failure and the diet for kidney disease have some differences. And to further complicate things, I'm a cardiac patient. That diet and the renal diet often conflict, except in matters of salt and the other obvious taboos. On dialysis diets folks have to be extremely careful of fluid intake...with the first stages of kidney disease fluids are strongly pushed, or so I've been led to believe.
So, let's go over things before we start. Here is what this page is:
A place to say, "Hey, I found a new recipe today and it was really good!"
A place to say, "I know, it stinks, but potatoes are off limits unless you leach them first. Here's how...."
A place to ask, "I'm going shopping today. What should I be looking for for snacks?"
That's it. Help. Encouragement. Information. Recipes. Hints. And just maybe some new friends.
Here is what this page is NOT:
This thread is not..... repeat, absolutely NOT..... a substitute for for the advice of your doctors or dietitian. Not now, not ever. And that reminder will pop up a lot. Expect it and respect it.
This thread is not a place intended to diagnose, treat, or "cure" anything. It's Kidney Disease. We have it. We can't cure it. We deal. The end.
This thread will remain civil, lighthearted when that's appropriate, serious when it's called for, and we will treat each other with courtesy and respect. There are
consequences for rudeness, sniping, and posts that hurt others. Period. No exceptions. I started this thread, and I can shut it down just as fast. (well, maybe faster - I type slowly)
I don't take points off for grammar, spelling, punctuation. If something is important enough or funny enough or supportive enough for you to want to say it, then what you are saying is important enough for me to want to read it. If I don't understand something, I'll ask. Please do the same if you don't understand me!
Brief periods off-topic are certainly allowed. Sometimes we need to lighten up and step back for a few minutes. But we have to remember that we will have people counting on us for help and support, so let's not linger off topic for long! I tend to be the worst offender. <sigh> Rein me in. Nicely.
All other rules established by BackYard Chickens apply. Please don't give out addresses, phone numbers, email addresses or other personal information in your posts. If you need to exchange such information with another poster, do so by private message - or "conversations" as they are now called.
That's it. I welcome warmly anyone who would like to be part of this thread. And you don't have to have kidney disease to join in. Support is always welcome and you are valued, whether you're a kidney patient or not. This is a heck of a lifestyle change for most of us who have been diagnosed, and friendly faces help tremendously. We might all learn something. Someday those of you who aren't personally invested in this now might be later, and what we all learn here as we go along might come in mighty handy! This is all new to me, so I will make mistakes in terminology, I will make mistakes in foodology. I will make mistakes in wordology. I will try not to make mistakes in personalityology. (I'm having a blast watching my little spell-checker dude have apoplexy over my made-up words!) So let's get started!
I'm Blooie. I've been a member here for a while now, although I was gone for the last 6 months as I started getting sick. I'm kind of a floater - I flit from thread to thread. I have made a ton of good friends on this site, and I anticipate adding to that number. I am having a lot of trouble with this renal diet. I'm beginning to hate blueberries, because every time I'm hungry, I end up with blueberries. <sigh>
For example, last night we had roast beef and veggies. I always make my gravy as my roast cooks, with everything together in the dutch oven....it's the way hubby Ken loves it. So the roast was ready. His plate had a couple of slices of beef, a mound of potatoes smothered in rich, brown gravy, and carrots with butter and salt and pepper. Mine? Well, I had to rinse off the beef and the carrots because there was so much gravy (my delicious gravy, too!) from being cooked together and the potatoes were cooked in with the meat and carrots. I didn't have any potatoes on my plate. I had a small slice of rinsed off beef, a few rinsed off carrots, and.....and....well, my plate looked pretty empty so I opened the fridge to see what else was in there that I could add. Blueberries. More doggone blueberries. So there I was at the sink, rinsing my entire meal before I ate it! I felt like a darned raccoon!
Blueberries - I am beginning to hate blueberries. I don't know if I had to rinse all that stuff off or not, but I did because I remember my sister doing it. She said that that's one of the few meals where she didn't leach the potatoes first, so the potassium and phosphorus from the potatoes would be in the other stuff. I dunno if that's right or not, but she was the expert as far as I was concerned so I never questioned it. I never had reason to until now. And the blueberries? Well, I don't know how to shop anymore, so the fridge and pantry are getting kinda bare. I want desperately to call Linda and ask her a million questions. I can't. Unfortunately we lost my little sister to her kidney failure in 2017.
I have chickens again after 2 years without them. And of course, just when those little pullets start giving me eggs, as of a week ago last Monday, I find that egg yolks are off limits. There is NO justice in a world where I can't dunk a corner of buttered toast into a runny egg yolk from my own chickens. Oh, well....I think that's one I'll just have to cheat on from time to time!
Well, there you have it. I'm floundering. I need you. And if the doctor and dietitian ever get their heads together and give me a diet I can understand and follow, I'll still love to get some help with real, people-really-eat-this recipes, and different ways to make salt-less meals without my beloved potatoes palatable, AND without using blueberries! And maybe I'll be able to help you! Maybe someone will come in and share just the solution you need. This isn't about ME...this is about US. Let's make it happen!
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I was happy to find out what Bulgar wheat was right here! I’ll play with both lists and separate the things I know I’ll eat from those I won’t touch and then see what we come up with here.
