Sorry I have not got back to you guys.
Upshot of this is that the home gave notice on our lad - 4-6 weeks. With a clause that if he kicks off again it would be just 48 hrs.
We got news that he had kicked off and they didn't tell us till the following morning. DH went and lifted him and brought him home even though they tried to stop DH taking him home. We got him here. NO care package till 4-6 weeks ? Funny that isn't it - same amount of time the Social services are paying the home for none care!!!!! When we get no help! Not even day care services.
It is sooo hard and I have cried everyday this week but today managed to finally sing praise to God all though I did not feel much like praising!
Nurse came tonight and Behavior specialist has been here or on the phone everyday so at least they have been supportive.
Thank you all for the prayer and support - A deal of you know that DH has heart issues two heart attacks and stents in also he has a cage in his spine holding his head on - The Vertebra in the spine are collapsing I have an immune deficiency issue which they think is MS which affects my hands and leg and my eye sight and balance. We both use walking aids. DH has had to ditch some of his pain meds as he can;t take them and care for Dan. We are so upset this is why Dan was put into the home in the first place. Now we are left litteraly "holding the baby!" I am sooo upset and disappointed. This is supposed to be a Christian run home? Nothing was hidden from them when they agreed to take Dan on. - This was supposed to be his home. Dan will never spend another night there. EVER!!!!
So please can we now pray for his Day care to be put back for him so he gets his routine and we get a break. Also that we get someone in to help with care while he is here and as well that - long term we get a bungalow for him in the community asap with 24/7 care package!!!! FOR LIFE!!!! So no one can take it away and no one can put him out. That is in HIS NAME!!!!
Please pray that these things come to pass real fast because we are ill and cannot keep up 24/7 care - that was done by an entire team of care staff in the home but just us chickens here! and no funding and no breaks day and night. IT is not sustainable!!!!
Oes x
Wow. That's just horrible. Praying for you all.